Hey Nurse... it's absolutely ok to laugh at yourself... when I "stagger" lose my balance or stumble, instead of being mortified and embarassed like I used to be, I just roll with it and laugh now... if someone's watching, I just look at them and say, it's the "walking drunk" part of MS without needing alcohol! ;) Gotta laugh or I'd just keep crying too much! 2nd hubby used to be unmerciful about
my klutziness... he had no idea... third hubby now thought I was just going too fast all the time rushing around... always trying to slow me down (it just made me slow motion klutzy then!) and now he understands more and just stays near, which is a great comfort. I'm afraid to go to a cane just yet as I'm afraid I'll make it my dependence instead of using only when necessary... kinda like if you carry it, use it so everyone can see... so for now I'm good just being concious of my whereabout
The vision stuff for me is fairly constant now... the right eye peripheral is just prone to suspect motion so I've just begun to slowly turn (if I turn quickly I get dizzy too) so I'm not giving it as much credit and reacting anymore. The left eye doesn't have that issue. I was painting some doors last month and when door was to the right of me, as I painted the one to it's left, the door on the right kept "falling" and I kept flinching thinking I was gonna lose the paint job to a crash... when I moved back to the door on my left, the door on the right was stable, so I know it's all right eye... ON. Now I want to know what to do about
My other major sign of the ON flaring up real bad is that my right pupil is larger than the left (not recieving light as well as the left, it's compensating by enlarging for more light and yet colors are still dimmer) and the eye always feels swollen then... but then it'll go down a bit, return to normal then start all over again. I've connected my eye tics with this too and usually a migraine will follow... it's sort of a sequence... tics, larger pupil, migraine later... migraine may be due to the eye's fatigue and strain too, I don't know. Neuro calls the atypical migraines... I never knew they were migraines, just awful nasty horrible headaches like helmets of pain mostly right sided.
Hope this helps... and yes, this site has been a real boost to my morale with this. I have alot of medical experience (with no degree to show though) and MS has baffled me alot... reading what Uppity, Gretchen and Rhonda advise on here alot and hearing the other experiences has helped tremendously.
Fear knocked ~ Faith Answered ~ No one was there! :)
~ Ephesians 6:13 ~ * ~ Psalm 27:1 ~