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Regular Member

Date Joined Feb 2008
Total Posts : 36
   Posted 4/19/2008 9:30 PM (GMT -6)   
hi friends,
  I had my apt yesterday with my neurologist. He got the ball rolling on the copaxone for me. Said that obviously my body just doesn't react well to avonex...not sure whether its a interferon issue or just the med itself because we have nothing to test it against but he seems to think i will do just fine on the copaxone being that its a non interferon. So that went well, it will probably take a week or two until i start and until then  I am on nothing as far as injections go. He also gave me a script for paxil....I have been having some anxiety issues, sleep issue, and stressing over the smallest things so he seems to think it will help. I am nervous about that, i took the first pill this morning and i know it takes a little while to reach full effect....but i have never had to take anything like that before so im a bit weary....we'll see what happens with that, i hope it will help. As far as the headaches are concerned, He had me up my propanolol again so now i take 5 a day...yippee!! (LOL sense my sarcasm) and hopefully upping it will keep the headaches at bay for now...again kind of a wait and see type thing. So thats how all that went. I had a terrbile day today. It was 84 degrees out, and i had the most excruciating headache all day long...and tonight i feel like i ran a 500 mile marathon or something...not cool. I had alot of problems last summer so i am scared of how this summer is gonna be...whats the best way to keep your body temp down? Staying in the a/c all day is not an option because of my daughter who of course thinks outside is the greatest place on earth...Im so exhausted...sorry im venting a bit.
Any advice about the heat would be great!! I hope everyone is doing well and as always thanks for listening!!
diagnosed 12-1-07
avonex weekly
propranolol 40 mg daily for headache control

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 4/20/2008 10:44 AM (GMT -6)   

Hey Lindsay,

Many, many of us with MS have problems with the heat.  If you google "cooling vests for MS" you may find something that helps.  There are many companies that make cooling vests for many reasons (certain job conditions as well as medical).  They can be quite expensive but I know that many people get them through MS support groups (National MS Society).  These vests work in different ways.  Some are "evaporative" which means you get them wet and they cool as the water evaporates off of them - quite inexpensive but not effective in humid heat.  There are other ones that have cool packs inserted into them and can keep you cool for 3 or 4 hours then need to be "recharged" by placing cool packs back into the freezer or refridge.  There are really hi-tech ones that circulate cool water throughout them but those are a bit limiting as they have to plugged into an electrical source.  I am in the process of getting the kind with the cool packs inserted into it.  I have an evaporative one and it works really well in dry heat up to a certain temp. 

Good luck with that.  Let me know if you need help finding sites.

Love and prayers,

Gretchen       co-moderator MS board       diagnosed with MS July 2006

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 4/20/2008 11:13 AM (GMT -6)   

Yes, the heat is a challenge.  I've not yet gone the way of the cooling vests, but I do carry lots of water with me, and cloths that I can wet and lay around my neck, or even on my head, if I'm sitting outside for any length of time.  Try to find some shade -- if you're talking about your yard, even an umbrella can help. I do better in shade than in direct sun.  Try to limit being outside to a half-hour or so..then in to cool down, then back out again if your daughter insists.  When you do get in, a cool shower can help cool you down.  Keep drinking cool water, suck on ice, rub your wrists and neck with ice cubes. I carry a small cooler of ice with me, and two cloths, one which I keep in the cooler and one I'm using, and switch off as the one gets too warm.

We moved away from Georgia because the heat and humidity became too much for me to manage, and this was 30 years ago. I can't imagine living in any sort of really hot humid climate anymore!

...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Apr 2006
Total Posts : 389
   Posted 4/24/2008 10:10 PM (GMT -6)   

Hi there. You mentioned Dealin83 that you had to take meds for anxiety, etc.  I know where you are coming from, as over the last couple of years I have had problems off and on with anxiety, and not being able to control stress.  Not all the time, but just the same it is there.

I take Ativan, .5 mgs when I feel this way, or have problems stressing, or when I feel agitated.  My neuro indicated to me that it might have something to do with a lesion or lesions on the back of my brain, an area that is resposnible for emotions etc....  So I take Ativan, and not only does it settle me down, but it also helps relax the spasticity that I get in my neck and shoulders.  I am one that hate to take things like this, but my mission now is to do what I have to do in order to feel good - and if it means having to take Ativan, then Ativan it is.....


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