Feels like I'm not breathing

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Regular Member

Date Joined Aug 2006
Total Posts : 68
   Posted 4/26/2008 9:46 PM (GMT -6)   
So when I'm relaxing i find that I'm not breathing. I actually catch myself not breathing!
LIke I'm holding my breath or taking a series of very shallow breaths.
Then when i do breath i feel like I've been suffocated.

I'm sure this seems strange but I'm just wondering if it has anything to do with the MS or is it something else.

I'm on Tysabri & Baclofen (if that helps any replies)

Regular Member

Date Joined Oct 2007
Total Posts : 343
   Posted 4/26/2008 10:06 PM (GMT -6)   
It's very weird but I haven't had this particular problem of not breathing but I have had the problem (and still do alot) of not getting a deep breath. No congestion or cold going on but it's like I can't breathe deep... so I can relate to the shallow breathing but I haven't found myself not breathing yet... though the shallow breathing gets nerve wracking sometimes.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 4/27/2008 11:45 AM (GMT -6)   
Hi Buckeye,
I can not say that i  have experienced this symptom. Wow this is a weird one but i am sure someone will be around to post who has. Did you speak to your doctor about this? Maybe he has a suggestion. Anytime anything new happens, they say to write it down, and if it persists, make sure you call the doc. I know there are some here that experience the ms hug in the upper chest area, can this possibly be something like that? Not sure, sorry. Good Luck.
Dx MS Dec 06, Started Tysabri March 2008, Baclofen, Cymbalta

Regular Member

Date Joined Aug 2006
Total Posts : 68
   Posted 4/27/2008 1:31 PM (GMT -6)   
Interesting, Sweetly, I never thought of that. I'm not sure if I've heard a description or not. I can never get a "good" breath or , like i said, i catch myself not breathing at all.

I am in a 8 year study. (I'm "special"...LOL) So i have to chart everything.

it is an odd thing to experience and creepy too.

Thanks for your response. I did need reminded about charting.

So i see you are on Tysabri too. Good to know i'm not the only one here. next month will be treatment 11 for me!!! Is Tysabri a long term thing for you? I know some doctors use it to calm things down and then switch you back to something else.
I'm in for th long haul. but if it's the only thing that works then i'm more than happy with it.

Thanks again,

mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 4/27/2008 7:21 PM (GMT -6)   
I have been having a problem with breathing lately (last week).  I often find myself taking a deep breath.  But I have been told I have walking pneumonia.  You can develop lung infections while on tysabri (side effect).  I have had 5 infusions (last one April 2), but have had to quit due to antibodies and inreasingly worse infusion/allergic reactions.

Barb/mystery reader
Diagnosed April 2007
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 4/28/2008 6:00 PM (GMT -6)   
Hey Dana,
To answer your question, i guess i am in it for the long haul. I was on rebif for 14th months and kept flairing. I feel better since i have been off it. I didn't realize my body hurt so bad, but thought it was just my ms. I was just diagnosed  Dec 06, however, my neuro thinks i have had it for many many years, as do i too. The more i read, the more i think it has been probably close to 20 years, just very quiet. So, when i didn't have results with rebif, and i kept flairing, i got scared that could i be getting into a more progressive ms and decided to go right for the tysabri. Everything is going fine so far, but just had my 2nd infusion this month.
Can i ask what exactly the study is you are on? It is for 8 years? Tysabri? How do you feel so far? Is it a study where you could be getting a placebo? This is interesting and would love to know more. Also, how long have you had ms?
Looking forward to your response. Oh and i love your name (it is my daughters  name, lol)
Take care
Dx MS Dec 06, Started Tysabri March 2008, Baclofen, Cymbalta

New Member

Date Joined Oct 2017
Total Posts : 1
   Posted 10/2/2017 6:22 PM (GMT -6)   

you posted the comment of feeling like you are not breathing. I recently commented to my tysabri nurse the same feeling. I notice the sensation the most when I am driving.

Have you found any info about this?

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 10/2/2017 10:24 PM (GMT -6)   
Hi arrofred,

You've posted on a very old thread. You may not receive a response. I'm sorry you are experiencing some breathing issues. I hope you feel better soon.

How are you doing on tysabri?
Diagnosed with MS July 2006, Celiacs 2012, RA January 2017

I have no lesions on my soul and so I live with no limits.
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