First, Colee, I'm very sorry to read of your misfortune with your neuro's office and the lousy experience with the staff. I've got a GP's ofc like that and they're learning it's not wise to mess with me for long. I just sternly make my "next available appt" then see the doc, explain what's happened and she takes care of them again (it really ticks her off when they do that to me)... or they disappear as has happened already a couple times. But you gotta get in front of the doc to do that. Don't let the staff run you off, the doc will never know why you don't come back... on the other hand if you truly feel you're just not getting anywhere, find a new one and be sure they know you need asap attention when this hits...
But, be prepared for enduring the flares, the symptoms, the situations we go thru. I'm only realizing just how long and how much I've been dealing with it and am amazed at the depth of it's impact on my body over the past 12-13 yrs (since I noticed my first numb spot). It's so complex and intricate and extremely unique to each of us that it's almost awesome as much as it's awful!
With that said, please do look into the cane... I have the mobility issues of instability and have learned to be very prepared but my cane days are coming more quickly than I care to admit. (Yep, I've been listening)
But around here there's always hope... and Uppity, just reading your comments, gives me tremendous hope when I think of what you faced when you first heard your dx... and what you have today to face it with... it's amazing! I've learned more than I ever thought I could in just these past 3months... and expect I'll just keep on learning so I can keep on hoping!
Thankyou to everyone on this board!
Fear knocked ~ Faith Answered ~ No one was there! :)
~ Ephesians 6:13 ~ * ~ Psalm 27:1 ~