Arms giving out

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odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 5/4/2008 8:33 AM (GMT -7)   
MS reminding me that it's not letting up as i had hoped. ivig drips seemed to be keeping things under control, but suddenly my arms seem to be losing feeling. first my left hand and forearm felt like they were falling asleep when i was driving. rarely use left arm for much, so didn't think a lot of it. then today both arms were feeling that way as i was just reading the paper. left arm feels worse. just want to be reminded of the unpredictability of this wonderful disease. feel like always something new and miserable waiting to attack. began w/left thigh, but even that is spreading to inner thigh and knee. due for mri next week and to see neuro week after that. not looking forward to results. linda

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 5/4/2008 10:56 AM (GMT -7)   

Hey Linda,

I am sorry to hear this!!  I can't remember, do you take a progression therapy?  I am not too familiar with IVIG.  I know that when I had that flare last year, my doctor offered me that after the solumedrol.  Does IVIG treat progression or just symptoms?  I am glad you happened to be scheduled for an MRI and a visit to the neuro with all that is going on.  I am sorry I don't have any words of wisdom for you.  I just wanted to wish you good luck and tell you that I am hoping you are feeling better soon.   Keep us posted.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 5/4/2008 11:38 AM (GMT -7)   

Hi Linda,

 

Ugh, I’m so sorry you are having these arm probs. Is there any chance you can get in to see your neuro sooner? Like Gretchen mentioned above, I wish I had some suggestion for you, but just wanted to let you know I’m wishing you the very best and hoping this will ease up for you soon. Hang in there.

Sunny

odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 5/6/2008 4:36 AM (GMT -7)   
Thank you both for responding. i have mri tomorrow, then neuro in a week. hoping the mri shows something to explain this.

ivig treats autoimmune activity and inflamation. have that drip monday and tues. next week. it usually makes me feel much better. it's frustrating for us all when treating ms only to have stabbing reminders that it's not gone away. next step would be tysabri, but not looking forward to that. linda
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