I'd like to introduce myself

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New Member

Date Joined May 2008
Total Posts : 3
   Posted 5/9/2008 3:01 PM (GMT -6)   
I'm new to all this.  I'm a 40yo lady who has b een having symptoms for about 8 years now.  I have not yet been diagnosed.  But several dr's have suggested I be evaluated and I finally went to the neurologist on Monday.  She suggested a brain Mri w/wo contrast.  my cognitive function, leg pain/numbness and extreme fatigue are my most problematic at this point and my breaks in between are becoming less and less.  I'm also having new symptoms and the ones I've had all along are getting much worse.  my legs get so bad at this point I'm affraid I won't be able to walk much longer.  I heard back from the neurologist yesterday that they had to cancel my MRI because my insurance denied it saying that it isn't medically neccessary.  At this point I'm very frusterated and very scared.  Any suggestions?

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 5/9/2008 3:17 PM (GMT -6)   
I really HATE insurance companies, second-guessing a doctor's recommendation!  ARRGGGH.  Do you have an appeals process you can go through, with the company?  Get your doctor to write a letter, too (and write..don't just call them). Sometimes they'll reverse their "opinion".
And of course get back to your doctor with this "simple" question.. "NOW what??" and see if he has anything he can offer.   It is possible to make a diagnosis without an MRI, but they certainly are useful.
I'm really sorry you're in this position. Another thought -- try calling the local chapter of the National MS Society.  If there aren't any in your town, they might be in the next larger town.  Or go to the National MS Society webpage -- www.nmss.org and look around. They have a list somewhere there of local chapters.  They have lawyers that might be able (for free) to help you deal with the insurance company, too.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

New Member

Date Joined May 2008
Total Posts : 3
   Posted 5/9/2008 3:22 PM (GMT -6)   
TY Uppity, I know my Dr. is fighting to get pushed through and in the mean time is redoing all the blood work to rule out other dx

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 5/9/2008 4:42 PM (GMT -6)   
Hey free4mykids!

Welcome to the board! I'm so sorry for u'r reason to be here, but really glad u found us! I agree with Uppity...stay on this! Calls and letters are definitely in order. After all...this is a service u'r paying for...they need to listen to u and u'r docs. Most everyone here has had some sort of insurance prob somewhere along this journey and we can all empathize with u. Hang in there friend and keep pushing for coverage to 'insure' good health care. Like Uppity said, MS can be diagnosed without mri, but really they are quite helpful and can certainly speed the dx process at times. In the meantime tho, get those other things ruled out and get closer to either an ms dx or some other answer. Again, welcome to the board!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 5/9/2008 5:24 PM (GMT -6)   
Hi Free4mykids,
Welcome to the board. You found a great place here. I am sorry you are having all these symptoms and insurance problems on top of it. Geesh. I understand your frustration and hope that this resolves soon for you. Keep at it. Uppity gave you some great advice. You need to be your own advocate. Good Luck and be sure to let us know how you make out.
Take Care
Dx MS Dec 06, Started Tysabri March 2008, Baclofen, Cymbalta

Regular Member

Date Joined Oct 2007
Total Posts : 343
   Posted 5/9/2008 5:34 PM (GMT -6)   
Welcome to the board and a great community Free! We've already met on the post about my spasms but oh man, your story is so similar to my own!
I have struggled for over 12 years with symptom after symptom creeping up on me but not being enough until this past couple years to get my GP concerned ... she sent me to a great neuro here in town but he's wise to those confounded insurance companies and when he ordered my MRI's it was on the basis of pituitary study, brain concerns (looking for tumors etc.)... she really needs to be creative. But when he ordered the nerve conduction test, it was denied and I'm making payments on it. He and I have actually discussed this. He has experience with his own sister who's MS and cannot get insurance because of it.
I have had the MRI's and no lesions found so far but all the other symptoms are present enough for him to finally dx me MS. I'm learning from everyone here... alot! Welcome here!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

Regular Member

Date Joined Jun 2008
Total Posts : 83
   Posted 7/4/2008 8:00 AM (GMT -6)   
Hi Free: I am new to this too and was wondering how you are doing? What is going on now? I would like to hear from you. Did you get the MRI? I saw a website where you can get help.
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