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New Member

Date Joined Apr 2008
Total Posts : 4
   Posted 5/10/2008 11:09 AM (GMT -6)   
Has anyone had trouble with there head feeling like it is on fire? Experiencing this today along with extream pain and neck stiffness.
Hi! My name is cindiago and I am very new to Healing Well. I diagnosed with MS. Having a hard time with the mential and physical changes of it all. Have always been very active and MS sure slows me down, not to mention how my capabilities have become so limited. Depressed very! Then I found this forum. Think it will help a great deal to talk to people that also have MS and I will have a better understanding of what I am dealing with. 
        God Bless you all!

Regular Member

Date Joined Oct 2007
Total Posts : 343
   Posted 5/10/2008 12:10 PM (GMT -6)   
Welcome Cindiago! 
I too am fairly new by a couple of months but have jumped in with both feet! Do the same... read everything here, ask questions, nothing's a dumb question around here, no matter how weird it sounds to you, I've found a lot of great information, great support!
I think we all go thru this "adjustment stage"... I know I'm still there. Part of me is rebelling against the whole concept of this. It was so much easier to accept hypothyroid and a daily med! :-) But this one's a new ballgame with rules that change with time and my own body's whim's ... so I'm really grateful for the multitude of experience around here.
Looking forward to hearing from you, hoping it helps lift your spirits to know 1) you're not alone and 2) it is manageable. yeah
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 5/10/2008 1:28 PM (GMT -6)   
Welcome Cindiago,
    You found a great place to hang out and discuss and learn alot about this disease. There is nothing better than to speak w/ folks who are going thru the same thing and completely understand how you are feeling. We all learn from each other. \
Take care and welcome
Dx MS Dec 06, Started Tysabri March 2008, Baclofen, Cymbalta

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 5/10/2008 1:38 PM (GMT -6)   
Hey Cindiago!

Welcome to the board! I"m so glad u've found us! As Deb said, this is an awesome site! The people here are so amazing and so willing to help in whatever way they can. Please do ask lots of questions or post u'r experiences here with us. We all look forward to getting to know u. I"m so sorry for u'r diagnosis, but really glad u'r reaching out to others with ms. There truely is nothng like talking to others in the same place with the same understanding. Hang in there friend...this will get better in time.

I"m not sure i've ever heard of the burning in the head before, but when u'r central nervous system is gone awry, as it is with ms, anything goes! The neck stiffness could be muscle spasms and pain associated with that. Are u taking any meds for that??...Bacflocan?? Unfortunately, with ms u'll lilkely experience some very odd sensations over time that can either come and go or just come and stay. As another of our members says, it's just the ms reminding u that it's there. This would be something i'd bring up at my next neuro appt. Maybe he can prescribe something to alleviate the pain. Take care and again, welcome to the board!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 5/11/2008 8:22 AM (GMT -6)   
I experience burning/tingling pain on the top of my head. It is worse when I am tired or stressed out. Neurontin has helped my with this problem. Last summer when it was constantly bothering me, I would put cold cloths on my forehead or neck. That also seemed to help a little.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)

Regular Member

Date Joined Apr 2006
Total Posts : 389
   Posted 5/13/2008 1:36 PM (GMT -6)   

Hi there, been away for a couple of weeks, so had some catchin up in here to see what is going on.

I do not get the tingling, etc in my head, but I do get really foggy, and with that some dizziness. But I do get the stiff necks, and similar muscle complaints.

I find what brings this on for me is stress, and when I get tired.  I do get the headaches too. I find if I take a few minutes for myself (and I really do this now without feeling guilty or whatnot) then the symptoms go away, at least for the most part.

I use to feel guilty when I would "check out" for a bit of time for personal health reasons, but I have discovered that I need to take care of myself. This is what works for me.

I have been on copaxone for the last 6 months, and I must say that I do feel much better. My head is clearer, etc, and I find that the fatigue is not as bad as it use to be. 

So maybe cindiago, when this happens to you, try taking "5" and see if this helps. I find that the fatigue really does some funny things to you - things that you do not at first associate with fatigue, but I found for me that it was and at times still is my major concern...

Oh and by the way, welcome!!!  Have a nice day all,


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