Has anyone been dx'd with Fibro that later turned out to be MS?

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Regular Member

Date Joined Nov 2007
Total Posts : 130
   Posted 5/19/2008 10:24 PM (GMT -6)   
I'm just wondering if this has happened to any of you?  My mom has MS and a lot of her symptoms are familiar to me.  There is always that little fear in the back of my mind that I could later be diagnosed with MS.  I haven't been able to find a PCP.  Mine sent me to a Rheumy and Neuro for diagnosis and once he found out it was Fibro he suggested that I find a PCP familiar with Fibro.  I have been without a PCP since December and my health continues to go down hill. 
Back to the point... my mom has no trouble with memory and I have terrible short term memory, which brings me back to my original question...   Were you ever diagnosed with Fibro prior to MS.
Thank you SO MUCH in advance,

Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 5/19/2008 10:49 PM (GMT -6)   

Hey tluvstulips,

I have heard of people being diagnosed with fibro then MS.  I don't know of any personally.  I know there are some similarities.  I would find a doctor with whom you can develop good working relationship and go from there.  Is there a symptom specifically that is troubling you?  MS has many many symptoms that are shared with other diseases.  I would not worry too much.  There is not a huge hereditary connection with MS.  While it can run in families, more often it just hits randomly.  Thanks for posting and let us know what you learn from your doc and how you are doing.

Some people with MS have memory problems and some don't.  It really is so varied from person to person.  It depends upon which part of the central nervous system has been damaged. 

Love and prayers,

Gretchen       co-moderator MS board       diagnosed with MS July 2006

Regular Member

Date Joined Oct 2007
Total Posts : 343
   Posted 5/20/2008 5:51 AM (GMT -6)   
Hello, tluvs, welcome to the board and a great place for lots of information.
Gretchen, I think I can say yes to tluvs question but I'll try to give a "short version" of my story and hope something from it helps.
Tluvs, as for the hereditary stuff... no one else in my family is fibro or MS.
I'd suffered a lot of numbness & miscellaneous weaknesses since about '92 but my problems seem to hit full swing in spring '99 after a serious bout with a virus from a mission trip the summer of '98. AFter 2 yrs of mega bloodwork, tests, cat scans, mri's, ultrasounds etc...(there were & still are kidney issues) I was diagnosed with fibromyalgia in 2001 by my GP who had also dx'd me hypothyroid with a uric acid issue too. He pretty much threw up his hands at that point though and the fibro became his reason for every ail.  I changed GP's shortly after that for better care on the thyroid and to get the uric acid under control and the fibro was there all the time in the background, sometimes blamed for what we couldn't explain, sometimes not.
In 2002, I had what they thought was a bout with viral meningitis that hospitalized me for several days and laid me up a month with residual double vision and a dinned hearing that resulted in severe tinnitus. The double vision subsidied after 30 days. The weird thing is that they never proved meningitis, never thought to test for MS & never thought to call the neuro in on my case either but I ended up in his office with the vision and hearing problems that still went away on their own.
Over the next 4 yrs, a plethora of symptoms and crappy weaknesses would continue to plague me and because I was now approaching 50 and suffering daily migraines AND considered a type A personality, everything was blamed on the fibro, my personality, my lack of self-disicpline and my age.
Until one day in 2006,  I lost fine motor control of my right arm (my legs had already been a problem for years but excused by all of the above) and happen to be at the GP's office for my thryoid appt so that she noticed it... that began the neuro merry-go-round and he dx'd MS immediately, then spent the next 18mos trying to disprove his dx because he couldn't find lesions until the optic neuritis set in in March at which point he dx'd it again, finally.
Yesterday I retrieved my hospital records from 2002, looking thru them all, the lab markers are there for MS. I suspect I'll hear the neuro tell me what he's been thinking all along: the 2002 incident was a very nasty flare totally misdx'd and mistreated. The rest is history now. My neuro doesn't call fibro a disease, he says drs just don't listen to their patients enough to hear the real issues so they find the real problem. For that I appreciate him greatly or I might still be chasing another dr to figure out what's going on.

Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 5/20/2008 10:38 AM (GMT -6)   
Hey Tluvs!

Wow...what great posts u've gotten already!! I don't know anyone personally who's been dx'd Fibro and then MS, but i'd suspect it's very possible. The symptoms do mimic each other on some levels.

I'm so glad u've found us and decided to post! This is such a great site with so many great people! I hope u'll feel welcomed and comfortable posting. Please do ask any questions u have and we'll all do our best to help u find an answer. Take care and again, welcome to the board!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*

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