Let me just say...wow. What a huge hassle u seem to have had and are still having. I guess the first thing i'd say is why doesn't u'r doc believe in ms??? This disease has been around for years wreaking havoc on people for such a long time...and COMPLETELY accepted by mainstream med as a KNOWN disease. How can he say that he doesn't believe in a disease of this magnitude, yet treat u with numerous meds for pain in arthritis even when he sees they are not working for u? How can he continue to keep 'trying' meds that clearly are not providing u relief...yet say with good and clear conscience that he doesn't believe in ms??? Wow. I guess that answers why u'r pcp hasn't stepped in to get u to a doc and services to aid in u'r med care.
Neurologists are usually great docs, but they can only go so far. They DO quite heavily rely on test results to dx ms just because ms is notoriously hard to dx. It can seem to be so many other things...mimic other diseases...so it's really more of a diagnosis of elimination. The doc will work/test to eliminate every other possibilty THEN if he's left with a pic of ms he will dx ms. If not...if u still don't have enuf signs or symptoms that indicate ms...even if nothing else is dx'd...u may not be dx'd with ms either. I know that's very very frustrating, but that is really the way it's done for all of us. Many here have been in limbo...not knowing what is wrong...for years. Many who do know went thru long periods of limbo before getting their dx.
As for the cost of the tests and doc's...well u'r right. It's very expensive, but it simply has to be done if u'r going to get an answer. I'm not sure i can offer any ideas on how to proceed without more docs and tests. There is no doc who is going to dx ms without being certain of his/her dx's. Most docs will take the wait and watch stance with the situation u'r in and that sounds like what u'r doc (neuro) is doing. Unfortunately that's maybe all u CAN do. U'r doc (pcp or neuro) can certainly prescribe meds for the symptoms tho and if he's not willing to do that then u should be asking him why. It doesn't have to be a matter of his belief in ms. This is a matter of u being in pain or having probs with functioning in daily life. If after u'v asked him for help and he says no or has not been able to give u adequate relief, maybe u should consider a different pcp. Certainly one who believes in ms!
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