My daughter is 15 and recently diagnosed with ms. I guess you could say we were fortunate (how ironic that sounds). She only started having symptoms in Feb of this year and was immediately sent to a neurologist who did an mri the next day to look for a tumor or ms. They were worried about
a tumor on the cervical spine and thought it would be terminal due to
location and large size. Turns out they diagnosed it as a lesion and found a few more smaller lessions on brain. Have seen a few specialists for some other opinions and it was concluded it was ms and we decided to start her on copaxone. Her father and I were so thankful that it wasn't terminal we figured we could cope with anything! Also thankful that it did not take years of dr visits and loads of $ to diagnose!
This is were my problems start... We decided on the copaxone because of the low side effects and, hopefully, great longterm effect since she was diagnosed so young. She is an average active high school girl who wants to be just like all the other kids. Doesn't want anyone to know she has any disease that makes her different from all the other kids. Luckily initial symptoms have finally cleared up (tingling and numbness in feet, legs, hands arms and chest) so to her she thinks she is cured. HATES the shots. Hates needles, I give her the shots, and she says the burning is awful. Every night at for at least 1/2 hour it is screaming and tears. Only been on it for 2 weeks so I know it is new and hopefully will get better.
She wants to stop the shots. Says she would rather deal with the disease later and live her life now. I know that a 15 year old can only look into the immediate futer, and that it is my job as her mom to think long term. I really believe the shots are the right thing for her. I told her that when she is 18 she can make her own decisions but for now she has to do the shots. I guess I just need some feed back from others who are experiencing what she is going through. As she says, I don't have to feel the pain (of course, no way for her to understand the pain I go through watching her).
I know that she has no idea how severe this disease can be and I am trying to help her stay that way so she isn't afraid of the future. Yet, I am trying to convince her how necessary the shots are. Any advise would be appreciated. It makes it so hard that it is my daughter going through this and I can't take it away.