Just back from the Neurologist

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Gooster
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Date Joined Aug 2006
Total Posts : 39
   Posted 6/9/2008 6:22 AM (GMT -7)   
 
 Well the neurologist did all of his fancy poking and prodding and has ordered an MRI. Unfortunately I will go on a waiting list and it will most likely be a couple of months before my appointment. He is putting me on (I am only giving this a guess on the spelling) Amitriptiline ? It is to be an antidepressant that is also used for pain. When I made a sigh of horror when he told me how long I would likely wait , he quickly assurred me that we were not wasting time because we were trying out this Amitiptiline. Does anyone know anything about this drug? 
 
The nuerologist also said that my symptoms were MS like but because I have herniated discs in my neck and degenarative spinal disease that he could only say that many of my symptoms could be from my neck but many of my symptoms were not possibly related and it is for those that he wants to investigate further. I don't know what I was expecting to hear when I went in but I am feeling a bit frustrated, perhaps because I know that there is such a long wait for any answers and my symptoms seem to be getting worse by the day. Even the tablets he has recommended , I will need to wait until the letter goes through my own GP before I can get a prescription filled, which he suggested would be at the start of next week. It seems an awfully laid back approach. Is there any homeopathic remedies that are effective for spasming and cramps?  sad

Gretchen1
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Date Joined Jan 2007
Total Posts : 3550
   Posted 6/9/2008 6:53 AM (GMT -7)   

You might want to try a supplement of magnesium.  That might help just a bit.  Other than that, I can't offer up and solutions.  I am sorry this is all moving so slowly.  MS is a very hard thing to get diagnosed.  We have many on here that have been in "limbo" for years.  Even without waiting on MRIs and other tests, sometimes it just takes a long time.  And MS is not all that common.  Many, many people go through the diagnostic process to find out that they do not in fact have MS. 

Good luck.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
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Date Joined Oct 2007
Total Posts : 343
   Posted 6/9/2008 5:45 PM (GMT -7)   
I understand your frustration Gooster, but be really patient with the testing. What you have going on already could be the source of your current issues and that would not be a bad thing,  because that can be dealt with and worked with. Having MS isn't desirable. For me after 12 yrs of knowing something was really wrong but never being able to really pinpoint it, it was a godsend answer but not exactly the happiest answer of my life. It's a slippery slope I wish on no one.
 
Now on to the drug, yep, I know it. It's also known as Elavil. It takes a bit to take effect but it's a good pain reducer with very mild to no side effects. You might experience some "cotton mouth" so drink plenty of fluids. For leg cramps, the magnesium is great but I also use Hylands leg cramps with quinine at night if it's like restless legs.
 
Good luck and be patient... it's the biggest key. You've got a neuro on board now, so if it's MS he'll find it, if not, he'll figure out what.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Gooster
Regular Member


Date Joined Aug 2006
Total Posts : 39
   Posted 6/10/2008 2:16 AM (GMT -7)   
Thanks so much for your advice. It is very comforting to know that there is someone who can relate to what I am feeling. I know I don't have a diagnosis for anything but I am going through an awful lot of things that are not common to most people so it makes it a bit difficult to share your experience. Here I know that each of you have been in my shoes at one point, dealing with the unknown and waiting for someone to come up with a solution. I have always seen myself as a very patient person, I have an autistic son and I had to learn quite quickly that any advancement was going to require a great deal of patience, but in this instance I can say that I don't feel patient. I feel as if I have been telling the GPs the problems and they haven't been taking it on board. You will know yourself better than anyone how strange it feels to have increasingly unexplainable things happen to your body. This morning my lower eyelid on my right eye turned in on itself. So my eyelashes were actually all on the inside. I have been having a lot of spasms in my eye recently and I get the sensation of it sticking but never turning in on itself. Have you ever heard of that before??? LOL. My biggest complaint is feeling so lousy and not being able to get around for the pain in my legs, but it is the weird things that keep happening that alarm me the most. Like my toes on my left foot feel like they are tied with a rubber-band or I feel like I'm shaking on the inside, or my tongue is numb. It is the silly wee things that get me going. I think the other thing that bothers me is that I know that I have to wait so long to the next step and that is where my patience is wearing thin, our National Health Service is the envy of the world but there are certainly a few wrinkles that need ironed out and waiting periods is probably the main concern and much more so for those folks that are waiting for life saving surgery. But enough of politics. I would appreciate any advice.
Gooster

As for your recommendations, could you please tell me about magnesium and are the other tablets you talking about just quinine tablets or is there some other ingredient? I am asking because we can't get quinine at the chemist we have to have a prescription for it.

Gretchen1
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Date Joined Jan 2007
Total Posts : 3550
   Posted 6/10/2008 6:08 AM (GMT -7)   
The magnesium is 250 milligrams and I take it twice a day.  I am glad you have health service that you appreciate.  I can't imagine waiting so long though.  No wonder your patience is tried.  I waited only a day for my lumbar puncture and I had one MRI immediately and the others took 3 to 5 days to get done.  They were read in 24 hours and I off I went.  Good luck and I hope you are feeling better very soon. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006


Gooster
Regular Member


Date Joined Aug 2006
Total Posts : 39
   Posted 6/10/2008 10:59 AM (GMT -7)   
Thanks very much I will get to the health food store sometime this week and pick those up. The fact that you got your testing so promptly was really good in that your wait wasn't prolonged (Sorry, unsure of how long it actually took you to get a diagnosis, so I'm not in any way being cheeky)but in a way it must not have given you much time to get your head around things. I guess you can't have everything in life, we have a very good medical service for the majority and I haven't much to complain about but I do wish the process would speed up just a wee take. After that episode with my eye this morning I was quite frightened and I e-mailed my neurologist. He was kind enough to reply and let me know that it wasn't anything to worry about in particular and that I should just wait and see. Which is right enough, but that is just so easy a said remedy but the actual following of that advice is another story all together. My kindest regards

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 6/10/2008 1:15 PM (GMT -7)   
Hey Gooster,

I hope the magnesium offers some relief. You are right, I was diagnosed very quickly. I am lucky that way. Some go for years without answers. I was on progression therapy after only 5 months of symptoms.

I wish you the best of luck in getting some treatment.
Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/10/2008 3:39 PM (GMT -7)   
Hey Gooster, here's the website ( http://www.hylands.com/products/legcramps.php) for the natural product I use with quinine.. my neuro was quite surprised I could still get this but says I can't tell how much quinine is in it, and that's true but nonetheless whatever they're doing, it helps. And it's natural and it's not interfering with my other meds so I'm good with it. He is too ... amazed but ok with it. Still for the really bad nights he prescribes Mirapex for me, better than Requip I think since it's less harsh on the liver... if you're prone to liver issues.
 
I also use Hylands Calms Forte for night time sleeping help... it's a natural anxiety sleep helper we used at the Detox Center I worked at as a Tech Supervisor. When you're detoxing drug addicts you find every possible natural way to help them cope and this was a good one... it also works daily for anxiety if need be.
 
I admire the health care your way for sure but my patience would wear thin too though, depending on your doc, sometimes I've got long waits too... my neuro is one of the highest in demand in our city so my appts usually get scheduled and end up a month or two out... but he's worth it. So I wait. Fortunately for me I'm a "mild but annoying case" ... :)
 
I would suggest the journaling of the symptoms/events. It takes all the info together for the doc to come to a conclusion. It wasn't until my ON set in that my dx was clinched and when I asked why... he said, you've just got it all now! (multiple numb spots all over, spasticity, tremors, eye tics, swallowing, headaches, GI tract/urinary, and then the ON) but none of it debilitates me to nonfunctionalness... it's just such a nuisance to cope and deal. That's where I wear thin til I remember those worst off than me.
 
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 6/10/2008 8:13 PM (GMT -7)   
I just want to offer my support for you as well. I am in limbo waiting to find out if I have MS or fibromyalgia or none of the above!
I take for suppliments the following and they have helped me trememdously. Especially the Magnesium for muscle aches. See if these don't help. I got my ideas from other pp here on the forum.

1 a day of cod liver oil
2x's day ginko biloba (helps brain fog)
1 Omega 3 fish oil
1 Lecithin also great for restoring brain fogginess
1,000 mg. of liquid calcium (I"m also nursing a 8 mo. old)
1 B complex
2 prenatal vitamins which are for my lactating

and another one but I seem to always forget the name of it. I got the idea from the fibromyalgia forum. It's made from magnesium

Best of luck to you
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 6/11/2008 5:46 AM (GMT -7)   
I looked it up for you.
It's Malic Acid. Works great for muscle aches
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 6/11/2008 6:53 AM (GMT -7)   
Here is a link to information on malic acid.  It is quite interesting as to how it works.  It is definitely popular for fibromyalgia. 
 
 
I just noticed that on the fibro board there is a HUGE thread on malic acid.  You may want to read that for more information.  Here is a link for that.  It did not read it all - it is quite lengthy.

http://www.healingwell.com/community/default.aspx?f=24&p=1&m=1067529


Gretchen       co-moderator MS board       diagnosed with MS July 2006

Post Edited (Gretchen1) : 6/11/2008 8:05:26 AM (GMT-6)

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