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domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 6/10/2008 10:42 PM (GMT -7)   
i've been feeling out of sorts for a few days now.  It started with a twitch i was having in my face on my right side under my eye that lasted for 2 days.
 
then i had a night where i was just in a really bad mood, like i felt overwelmed by even the simplest thing.
 
last night i felt achy in my right leg before bed, woke up at 3am with severe leg pain that went from my hip to my ankle.  it was a deep, burning pain, it felt like it had to be my bone.  at the same time i was having major twitching in my hip and arm all on the right side.
 
i finally got back to sleep and woke up with no pain, just major stiffness.  i've also had another one of those bad mood days.  i feel like my skull is being squeezed and the back of my neck hurts and is all tight feeling.
 
i have not been officially dx yet.  does any of this sound like ms?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 6/11/2008 6:33 AM (GMT -7)   

Dear Domanique,

I am sorry you had such a rough night.  MS is such a varied disease.  This can sound like someone's MS or it can sound like a whole host of other diseases.  I can hear your frustration but you have to get a doctor to diagnose you.  What tests have you had done?  MS is a disease of exclusion and it can take some people years to get a diagnosis.  All other possible causes must be ruled out.

For me the tests included - a neurological exam by one GP and two neurologists, a ton of blood work, a lumbar puncture, MRIs of the brain, neck and spinal cord, and evoked potentials (vision, hearing and lower extremeties).  I had no indication of infection or metabolic disorder.  I had white matter lesions of the brain and spinal cord, oligoclonal banding in my cerebral spinal fluid, failed evoked potentials in lower extremities and vision. 

Talk to your doctor about your symptoms.  Keep a symptom journal of what is bothering you and and when it has done so.  Try not to go to your doctor and say, " I am just sure I have MS."  I would not self diagnose, it tends to put you right onto the hypochondriac shelf for many doctors. 

I wish you good luck.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 6/12/2008 6:54 PM (GMT -7)   
Gretchen,
If a person fails the evoked potential in vision, should they run more tests? Like MRI's or something. I'm just wondering because I'm not due to go back for 2 more months.

Domanique, I am also in limbo waiting for some kind of diagnosis. I sure hope I don't have MS but I can totally understand your frustration. I have all kinds of wierd sensations almost every day and all I can do is just write them down in a journal in a brief way for future reference. It's something that we CAN do now while we are waiting to find out. Hang in there!
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 6/12/2008 7:26 PM (GMT -7)   

Hey Carolyn,

Have you failed the evoked potentials (vision)?  You also have lesions it is just that your neuro (the other doc) says they didn't look like MS? I hope I am remembering this correctly.  I would be asking what is next as fas as testing goes.  I can't tell you that you have MS but it seems like you have something significant going on.  But that is just my opinion, remember I am not a doctor.

I am frustrated for you, Carolyn.  Keep at the doctors.  You may have to wait 2 months but until then, keep that journal of symptoms.  Your new guy may be doing the wait and watch routine.   


Gretchen       co-moderator MS board       diagnosed with MS July 2006

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