Advice during "flares" or "residuals"

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Regular Member

Date Joined Oct 2007
Total Posts : 343
   Posted 6/14/2008 4:33 PM (GMT -7)   
I'm needing some advice on guidelines to understand what to take serious and what to pretty much wait out,etc.
For example: Last Monday night nausea had set in so bad I thought I'd be violently ill but wasn't and I attributed it to the LP headache and figured the blood patch would take care of it, but that didn't happen, yet the nausea passed but came back in the evening. It's pretty much returned again almost every night now... briefly just long enough to make me nervous but it doesn't do anything.
The LP headache overrode most of this this week but it subsided by Friday...
Then Thursday at about 4pm, my right arm immediately became very painful with a radiating pain from my upper right chest, down the shoulder to the full arm to the fingertips... the arm felt warm, the pain simply radiated throughout, not a full throb, but maybe like I had a tourniquet on when they draw blood for labs... but of course there's not tourniquet. It's just uncomfortable. It's still pretty much that way now... going on 3 days.
And Friday morning, I had extreme intestinal distress without warning prior to the mess... which just drained me to a very weakened feeling.
So combined I'm thinking... crud, these are like a female heart failure warning... (I mentioned this in another post maybe) so I told my hubby about the arm thing Thurs night... just in case. He looks at me funny, I tell him just remember it so you can tell the EMT's if something happens... BP was 140/80 pulse 76, nothing majorly bad ( a little high but Provigil raises it a bit).
So the question is: At what point do you take a symptom serious enough to go to the ER or a Walk in Clinic to be sure you're not sitting on a ticking time bomb?
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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Date Joined Jan 2007
Total Posts : 3546
   Posted 6/14/2008 6:49 PM (GMT -7)   

Wow!!!  I would have gone on to the ER with those symptoms.  I have never had anything like that with MS.  I have had nausea but only when my chronic vertigo worsens.  The intestinal distress sounds more like a bug or a food sensitivity or something.  And I have absolutely no way to explain your arm pain.  I suppose it could be nerve pain.  That sounds really bad.  Do you have any history of blood clots?  Just a thought with the tourniquet descpription.  I would definitely get those symptom complaints checked out.  You are really new to MS and it does take a while to figure out what is MS and what might be a new health health problem. 

I can usually tell if what I am experiencing is MS related.  I have a pretty predictable pattern of residuals (vertigo/balance, vision problems, numbness from mid shin down, bowel and bladder problems, left leg spasticity, fatigue).  I also can usually tell if I am flaring.  I tend to get the severe vertigo back plus something classically MS - new sensory stuff or spasticity.

What you are describing could be MS but it could also be something else that needs to managed/treated/watched.  Good luck and I hope you are feeilng better soon.

Gretchen       co-moderator MS board       diagnosed with MS July 2006

Regular Member

Date Joined Oct 2007
Total Posts : 343
   Posted 6/19/2008 4:55 AM (GMT -7)   
I hear ya Gretchen but I waited it out like I always do... I noted it, I'll discuss it with my neuro and he'll tell me as he has before that different nerves react different way to different stressors and I was reacting... besides I had the virus going on too, coulda been that stupid headcold moving around to the GI Tract. It's just darned hard to figure what's the next thing coming sometimes.
My right side has had a numbing down issue for a while now and it's progressing, I really think the LP just seriously aggravated it and triggered a reaction... because for the most part everything but the tinglies up the back of my head have subsided.
To run to the ER would be a HUGE bill, and a waste of time around here... it's just a little nerve wracking to try to figure out what's the crisis (like IS something really serious happening or not) or is this residual. So I pray, trust God will kick my butt to know when it really serious and keep going. :)
Nerves are very fickled and frustrating creatures in our bodies. And like you said, even when you have MS,  it doesn't mean other stuff isn't going on too and they aren't remotely related to the MS. That's also a hard part to figure out...oh well, keeps life interesting!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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