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Regular Member

Date Joined Apr 2007
Total Posts : 164
   Posted 6/18/2008 6:24 PM (GMT -6)   
Hi everyone,
had the nerve test today.  It was a little uncomfortable but tolerable.  Actually when I told the doc that I didn't feel the needle part she said she was glad I didn't feel pain, but I should have felt it.
Anyway, some of the nerves in the knee and thigh didn't react as strong as they should have, so I have a low abnormal result.  She consulted my rheumy while I was there to see if we should do a nerve biopsy.  They opted to repeat some labs, if they are still abnormal, they want to do a skin biopsy of the rash before a nerve biopsy - less after affects.
In the twenty years I've been going through this, I have to say these two docs are being very thorough, but not just sending me for test after test - there is always a reason, and like I said above, the least after affects possible.  They have done labs, and tests that noone else has done, so hopefully something will "red flay" and we'll know what this is soon.

Regular Member

Date Joined May 2008
Total Posts : 88
   Posted 6/18/2008 9:54 PM (GMT -6)   
Hey Deb- I haven't heard of a nerve biopsy before. What would they be looking for with that? I am glad that you feel like you are in good hands at least and hope you get some answers soon without too many more tests. Willow

Regular Member

Date Joined Oct 2007
Total Posts : 343
   Posted 6/19/2008 6:40 AM (GMT -6)   
Hey Debbie, you do sound like you're in great hands and if you can avoid that nerve biopsy, do. 
According to my neuro, it's the last move if the dx is not able to be determined by other means... my Nerve Conduction Test turned out very similar to yours... my feet went numb and my legs went spastic with the electric shocks... then the partner (a younger cockier neuro) came in to read my test and immediately assumed I was diabetic... my neuro stated, that my results of: nerves are smaller & slower reactions than they should be for a woman my age and size was consistent with my persistent symtoms of numb feet, legs not always working, imbalance, spasms, restless legs etc.. but I don't have any rash of any kind any where.
The bottom line on the biopsy for my neuro was that he prefers to check DEAD nerves to find out why but the Nerve Conduction Test simply pointed out I had greatly reduced sensations and particularly  on one side.  I have learned all our bodies are very very different iwth this disease and though it mimics many things, and it hides alot, a thorough doctor is an ace to have in your camp! I hope they discover what's going on for you soon. :-)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

Regular Member

Date Joined Apr 2007
Total Posts : 334
   Posted 6/19/2008 1:22 PM (GMT -6)   

I’m so glad you’ve got good docs who are being thorough and persistent,  and I’m wishing you the very best, Debbie.

mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 6/19/2008 2:41 PM (GMT -6)   

Hang in there. I am glad the test was not too uncomfortable.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 6/19/2008 5:06 PM (GMT -6)   
Hi Debbie,
I am so glad you feel comfortable with your doc's. That means the world, doesn't it? Well, good luck with everything. Just wanted to let you know i'm thiking of ya.
Take it easy friend,
Dx MS December, 2006
Started Tysabri March, 2008
Baclofen/Zanaflex Combo,
Cymbalta and Provigil

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