Multiple Sclerosis and Heat

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20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 6/23/2008 10:06 PM (GMT -7)   
I have had MS for 20 years since this past Eastertime.  (the year is 2008)  I have a terrible time with heat.  I would like to hear from people with MS that have this problem.  Summer is real bad for me.  I wear coolers around my neck and drink constantly.  I have Air Conditioning but, I do any housework and I am sweating.  My face is the worst.  I have to sit down and rest and then continue.  It takes me all day to do a room...

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 6/23/2008 11:01 PM (GMT -7)   
I am sensitive to heat as well.  It seems to be a pretty common complaint.  I don't have any words of wisdom for you.  If you have AC and you are still hot just house keeping; that is pretty extreme.  I am not that sensitive.   Have you tried a cooling vest?  They are meant to be used outside but I suppose there is no reason that you can't wear it in the house for work.  Mine maintains an internal temp. of 58 degrees for 4 hours.  There are lots of different designs.  They can get quite expensive.  If you have a local MS society near you, they can often help with the cost. 
 
Good luck with that.  Welcome to the board.  I look forward to hearing from such an experienced voice. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/25/2008 12:29 AM (GMT -7)   
Hey 20 Years
 
Welcome to the board! I can't add anything but thought i'd give u some links to check out. I hope these help.
 
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


mamana monster
Veteran Member


Date Joined May 2004
Total Posts : 2236
   Posted 6/25/2008 9:08 AM (GMT -7)   
Hi there! I too have difficulty with the heat and I live in Texas so it gets a bit toasty here esp during the summer months. I have difficulty with my vision and at times it makes me feel like I am going to throw up, however once I cool off it is fine. I have found that drinking tons of cool water while I'm outside is helpful as well as taking frequent breaks either inside or in the shade. I have also become overheated when I clean house (with the a/c on) as a matter of fact the first MS episode obvious enough for me to pay attention to occurred while cleaning my bathroom...hmmmm....maybe I shouldn't clean toilets anymore! Ha!

Hope you find something that is helpful!
Blessings.

 

 

"Be yourself. An original is always worth more than a copy."

 

Dx'd with Ulcerative Colitis (pancolitis) 2004 in remission...no meds!

 2008...Multiple Sclerosis...Avonex once weekly

 

 


20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 6/25/2008 12:39 PM (GMT -7)   
Thank You for the welcome to HealingWell. Thanks for the advise.

Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 6/28/2008 11:46 AM (GMT -7)   

Once over the embarrassment of wearing what I think looks like a thinner life jacket (tip- go with khaki not royal blue...more of a fishing vest look in khaki) I rely on my cooling vest a lot.   For when I am outside in the heat and also recently for traveling to Tucson for work (on my!).  It's great for that 20 minutes on the airplane when they turn off the air to taxi out on the runway and wait in line!  Mine has the gel packs, Coolsport, and they can even be put in a hotel sink with cold water and some ice and are good to go in 20 minutes.  Last for 3 or 4 hours.  And yes, you could do housework in it.

Short and quick tips-  Running wrists under cold water for 5 minutes (learned in Tucson there is no cold water from pipes), splashing cold water on face neck, arms, anywhere! and letting it just air dry, a five minute cool shower when desperate, massive water to drink, I don't have A/C at home so keeping blinds and things closed up in the early part of day.  (I live in the Northwest so I can survive without a/c though a bedroom one would be nice for a few weeks).  Seeking out shade (and bathrooms) when arriving somewhere new, moving slower- sluglike sometimes, avoiding stress and that's all I have for now.  Oh- and a frozen type of drink like old school Slurpee or a fancy Frappucino can really cool me down from the inside out.   Willow


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 6/29/2008 8:03 AM (GMT -7)   
totally agree with all you shared, willowmom. i have discovered rita's philadelphia water ice (italian ice) and rely on it to cool me plus it adds fluids. linda

20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 6/29/2008 11:06 AM (GMT -7)   
I want to say TY all for giving me some ideas....It is great (well, not that other people feel this way with heat and falling, it is just now I don't feel like I am NOT the only one) to hear your stories....Now, I show this to my husband.  I say it is so hot and he says it is not....but, he knows I can't cuff it.  Well, I going to have to go find my cane and get it fixed to use....It was my Grandparents can I think...Very pretty...I'm 52 so it is quite old. yeah

casinokid80
Regular Member


Date Joined Mar 2007
Total Posts : 46
   Posted 6/29/2008 1:57 PM (GMT -7)   
I also haves problems with heat. I get so tired, i just drink alot of gatorade and run my head under cold water. It was 102 in new york a few weeks ago, had to stay in the ac all day. For me its not actually the extreme heat as much as the humidty. I have more issues when its extremely humid right before a thunderstorm. As ive been to vegas and never had problems with the dry heat. 100 in vegas feels like a humid 75 in new york.

flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 9/15/2008 6:48 AM (GMT -7)   
I can be in the heat only a few minutes before I start walking drunk, talking drunk and sometimes my vision blurrs when I'm real hot or I'm at work and working up a sweat.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/15/2008 9:02 AM (GMT -7)   

Hey Flutterbug

 

I'm wondering if u have any of the cooling devices? There are vests that seem more widely used, but other devices as well. As i suggested in another thread, u may also try making sure u have a cold...very cold maybe....drink with u when u know u'r going to be in the heat. Cooling u'r body from the inside out is faster and when combined with the devices, may help u enjoy the outdoors a little more.

 

http://www.nationalmssociety.org/about-multiple-sclerosis/treatments/exacerbations/heattemperature-sensitivity/index.aspx

 

http://www.mscooling.org/coolingproducts.html

 

 


rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 9/15/2008 7:35 PM (GMT -7)   
With me its also the humidity!!!! I live in upstate NY, and during the really humid days its stay inside with the AC or else. I found the best thing to do is dive into a pool or a long cool shower to cool off completely..dry off with a fan nearby, and I'm quite comfortable....
It seemed like a good idea at the time


Steph57
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 9/16/2008 6:55 PM (GMT -7)   
 
Hi and welcome!
 
I had noticed increased intolerance to heat years before my MS diagnosis. I live in the NE, but I use the AC far more than I used to! I can stay out on a warmer day only for so long before I have to run into an AC environment. The problem for me is that people don't believe me--I'm "anti-social," "imagining it," "making excuses," etc. I wish I could offer some tips. Alas, I can offer only support and empathy.
Steph57
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 9/17/2008 6:11 AM (GMT -7)   

Steph57,

Offering support and empathy is more than enough to make you welcome here.  Thanks as always for your input.  I am sorry you have a rough time in the heat.  It does makes us seem anti-social doesn't it?  Just remember that you are not alone.  Heat intolerance is so common in MSers.  We need to have our own big happy air conditioned commune!!!!  We would be plenty social then!


Gretchen       co-moderator MS board       diagnosed with MS July 2006

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