2nd part of secondary progressive

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Regular Member

Date Joined Dec 2006
Total Posts : 29
   Posted 6/25/2008 5:40 PM (GMT -6)   
i've had ms 18+ years, walked with various help and now the progressive has shown up the last 1 1/2 years.  i've quiclky have become totally bedridden.  my husband picks me up for everything as i've lost all below my hips and am still 'progressing!'.
is there any homemade devices, tricks,  anything that can help us to get me up and out of the bed.>>that is low in cost if at all><<?
i'm 5'10 and being in bed have gainec weight.
im beginning to think a rest home is the way to go but we cannot bring ourselves to discuss it.

Forum Moderator

Date Joined Jan 2007
Total Posts : 3568
   Posted 6/25/2008 5:50 PM (GMT -6)   

Dear Frannie,

I am very sorry to hear this.  I would contact your local MS society as soon as possible.  See what they recommend.  They may have a low or no cost sling/crane that they can get for you.  Or they may have some techniques or a therapist that can train you in better transfer techiques.  Another resource would be your doctor.  Plase don't continue to do all this on your own.  Good luck and please keep us posted.

Gretchen       co-moderator MS board       diagnosed with MS July 2006

Regular Member

Date Joined Dec 2006
Total Posts : 29
   Posted 6/25/2008 6:06 PM (GMT -6)   

hi gretchen, after close to 20 years we have tried every kind of doctors, medicines, store bought 'helpers', altertanives, etal.  have been  pretty consistant on ms helpers from ms society and on.

i do have ms but ms does not have me, would just like to see what folks have invented to help?

Regular Member

Date Joined Aug 2007
Total Posts : 144
   Posted 6/25/2008 7:46 PM (GMT -6)   
frannie55 just a hint if your upper body is functionable try getting a trapeeze...They should have them at the places where u buy scooters and accsesseries..And the ms society gives u 500 dollars a year towards stuff like that.I know of a guy who pulls himself up with the trapeeze everyday maybe it could help you...good luck to you...pokey79
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily

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