I was dx w/MS years and years ago - I had many of the symptoms that you have described and the MRI reflected much the same. It affected my central nervous system and I had arthritic symptoms, changes in my cycle, migraines related, lymph involvement, the numbness and tingling, nausea and on and on...
Many of these symptoms are indicative of some type of inflammatory response. So, your quest is to figure out w/your doctor what is driving this in your body. Whether infection or something else.
I do have questions and of course, no, we are not physicians. We can listen and perhaps pose those questions that we often need others to ask us to help us be informed and better prepared for a visit to the doctor so that we can advocate in a way that achieves the standard of care that we need and merit.
Q. Where do you live?
Q. Can you identify anything significant event that occured either in health, diet, environment, activity, physiologically or emotionally (not for the purpose of some weirded out response,but related to immune response)...?
Q. Does your pain stay in the same place, move around or migrate from one location in the body to another or resolve as the day goes, etc??
Q. How old are you?
Q. Have you taken photos of the rashes. If not, and if you still have them or see others, take a picture. In the meantime, describe your rashes, please.
Q. That's nice that the neuro could relate to your sensitivity neurologically; but my question would be "is this typical of your reactions in the past or is it something new."
The pain in your neck could be causing some of the systemic and/or referred pain; however, if you have some type of chronic infection developing, it could reflect in this way b/c of the inflammatory response infections evoke.
Did your doc run a chem panel to see how your white blood count looks and/or if your body seems to be fighting an infection? ANA? Autoimmune markers? Thyroid panel? Immune Complex markers?
Gretchen1 may be recommending something that would be worthy of checking into regarding Lyme disease; but you would need to be with a physician who understands how to appropriately test and diagnose you b/c of different standards of care that are in the midst of a heated political battle. This simply means that if you go to a primary care that does not treat chronic Lyme, a basic standard lyme titer will be run which is known for its lack of specificity and sensitivity, yet is used b/c docs do not have adequate up to date tools nor the education yet. If you choose to test for lyme, you just need to know that the CDC guidelines state that it is a clinical (based on your physical symptoms and history) diagnosis backed up by labs. We can be of help to you if you choose to go in that direction.
You may email me. I am not generally on this site; but, came on invitation b/c of someone who read your post and cares about your wellbeing and was concerned about your symptoms being properly diagnosed.
Gretchen1, would you also keep a watch and float a note if I miss something or can be of further service. There are others who are here at HW who may be able to be of encouragement in helping you to 'know'.
In the meantime, many have walked in your mocossins, so know that you are not alone. You are right to ask the questions and it will be part of the puzzles that comes together as you learn to advocate until you know.
God bless, Sojourner
You can also contact me through the Lyme disease Forum here on HW if you would like to communicate. Just initate a thread w/my name and others will ring my bell! Hang in there! You are going to get your answers.
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"For there is no secret and there is no defense; there is no possibility of control except through the aroused understanding and insistence of the peoples of the world. We scientists recognize our inescapable responsibility to carry to our fellow citizens an understanding of atomic energy and its implication for society. In this lies our only security and our only hope - we believe that an informed citizenry will act for life and not for death. The release of atom power has changed everything except our way of thinking...the solution to this problem lies in the heart of mankind. If only I had known, I should have become a watchmaker." ~Albert Einstein