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kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 7/13/2008 11:37 PM (GMT -7)   
Hi-I posted the message below on the Crohn's Disease and Arthritis forums.  I didn't think of MS yet.  My mom has this disease and so does my Aunt. (her sister)  Are constant goose bumps a symptom any of you experience.  I don't have great insurance so if this is way off, I'd rather not go to a neurologist.  Any advice or experiences you are willing to share are greatly appreciated.  Thanks.  I can't imagine adding another disease to my
 list nono    The message I posted is below.
 
Hi everyone.  I haven't posted in a long time.  I have been a member of this forum for quite a while though.  I am having a new issue and I don't think it is related to Crohn's Disease or Rheumatoid Arthritis. I don't know where else to look.  I have researched some on the internet but am not finding too much info.   I am often experienceing constant goose bumps.  This mostly happens at night.  They will just come and go every couple minutes and are mostly throughout my arms and legs.  It seems like it may be something neurological.  I also have RA or joint inflammation due to CD.  I have never experienced this before.  I have been in a flare lately with the CD and RA.  It seems different though b/c my pain is mostly only on my left side with a lot of numbness.  Any ideas?  I'm posting this on the RA and CD forums.  Thanks.
Dawn
 
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 7/14/2008 7:26 AM (GMT -7)   

Hi Kronstoolong,

I am sorry to hear of your diagnosis of Crohn's and RA.  I have not heard of anyone with MS having intermittant goosebumps. That does not mean that much though, it certainly could be something, someone has experienced.  The numbness is a bit more typical but it seems just too vague.  Obviously I am not going to diagnose you.  I am sorry you feel you hesitant about asking a doctor due to insurance issues.  If you are in a Crohn's flare, I suppose it could be from that.  You maybe want to see if this symptom stays after you are feeling better from the flare.  Then you can make a decision about seeing a doctor.  Can you email your doctor?  My neuro responds very quickly to my email questions. 

I wish I could be more helpful. I hope you feel better very soon.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 7/14/2008 12:19 PM (GMT -7)   
Thanks :)
Dawn
 
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.


GranmomJB
New Member


Date Joined Jul 2008
Total Posts : 9
   Posted 7/14/2008 10:18 PM (GMT -7)   
eyes Hi kronstoolong....I have had MS since I was 16 and I'm looking at 60.  I get goosebumps associated with pain.  I started this in the 1990 and it is the darnest feeling.  I'm hurting and my arms and legs get goosebumps.  I have always associated it with my MS, but it's only when I'm in pain.  I wish you well.  My best friend has crohns and she is really sick.  She also has fibromylagia too.  Good luck, GranmomJB

kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 7/15/2008 11:18 PM (GMT -7)   
Thank your Granmom, I hope you aren't hurting now. I increased my Lyrica intake (I jave recently been put on that) It seems to be helping. I think you are right. My pain level has been extremely high and therefor I haven't been getting enough rest. Now that I have increased the Lyrica, I am doing much better. I know complaining about goose bumps sounds a little silly. But they aren't just ordinary goose bumps, they feel scary...almost like I could have a seizure in those parts of my body.

I pray everyone can feel as well as possible tonight. Thanks.
Dawn
 
31 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl, Humira, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 
In the past have taken Prednisone, Pentasa, Remicade, Imuran, Plaquenil and I am sure many, many more.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 7/16/2008 7:43 AM (GMT -7)   
Although, the sensory junk we experience is usually harmless it is nonetheless very scary.  We know what is typical and what is just wrong and goosebumps in the middle of the night is not a correct response.  We register that as a signal that something is haywire in our bodies.  It is very often something neurological and when something is wrong with out heads, it is very scary.  That "harmless" sensory stuff can make you crazy!!!  It can be a very depressing signal that we are chronically ill.
 
kronstoolong, I hope you get some relief real soon.  You are always welcome to post here!
 
GranmomJB, thanks again for posting.  You are very supportive.
Gretchen       co-moderator MS board       diagnosed with MS July 2006


casinokid80
Regular Member


Date Joined Mar 2007
Total Posts : 46
   Posted 7/16/2008 11:06 AM (GMT -7)   

thats great that the lyrica works!  The doctors finally gave me lyrica myself.  I took it last night, and felt really weird from it.  Weird in a enjoyable kind of way lol.  I felt kind of light headed, really relaxed and very lethargic.  Do you get any of these symptoms?

I used to get gooosebumps quite often myself, but i don't get them in the summertime.  Its never followed by pain.


kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 7/17/2008 12:21 AM (GMT -7)   
Hi Casino...The Lyrica made me feel like a total space case for the first 1-2 weeks. I would almost fall asleep standing up. Now those symptoms are completly gone. I may get a little relaxed but that's it.

thanks for all the replies...I am feeling better. I think my legs were getting way over tired...I was really overdoing it. I am resting more and feeling better.

Thanks again.
Dawn
 
32 Years Old
Diagnosed with Crohn's Disease at age 17.
Diagnosed with RA or severe joint inflammation due to CD.
Hypothyroid, GERD.
 
Currently taking Leucovorin, Levoxyl,  Lyrica, Methotrexate, Vitamin D - 50,000 IU per week, Vitamin B12 injections, Lunesta and Vicodin or Percocet as needed.
 

“God Loves People More Than Anything.”

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