long, but need advise

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Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 7/19/2008 11:54 PM (GMT -6)   
I need to talk, I've been having a really rough time lately.  I was always sickly as a kid, I caught everything and it seemed to take me a lot longer to recover from evrything.  I got pg at 17 and had preeclampsia and had a really hard birth, i bled alot.  the day they released me from the hospital i got so cold i couldn't warm up and my lips even turned blue.  everyone wanted me to go to the hospital but i was afraid they wouldn't let the baby stay ao i wouldn't go.  thats when my extreme tiredness and weekness started and it has continued throughout my life.
then about 4 yrs ago i started to have these pain episodes.  they would come on at night or early morning and last for hours and then go away.  after i would feel exausted for weeks.  i could never pin point where the pain was cuz it just felt like it was all over.  i went to my dr and was told it was depression.
the pain episoded i experienced were only coming every 6 mths at first.  then things changed again.  the pain episodes started coming more frequently, they lasted longer and i not only felt week and exausted i had new things going on.  numbness in my hands, twitching, muscle spasms, shaking inside and out, pain in my neck where i couldn't move it for weeks, loss of grip, memory problems, not being able to concentrate, not being able to get my thoughts together.  zoning out when people would talk to me, unable to find words, pain and tightening in my esophagus, not breathing problems, just this squeezing feeling. 
then we went to visit family and drove for 4 hrs it was New years last year.  after we got back home from the visit i had a bad cold and couldn't get rid of my cough for about 2 mths.  i never went to the dr for this cuz i was sick of them dx me with depression for everything, or it was my weight.  after that i have not been well at all.  i will have days of pain, constant weekness so bad at times i can't stir things on the stove. 
i went to a neuro and cuz of the bad time i'd had with drs in the past wrote him a list of my sx and a letter explaining my past xperiences befor i went in.  he relunctantly ordered mri's at an opensided place of my neck, brain, and back without contrast.  he said there were no lesions and said he wanted me to try lyrica, he handed me the bottle but ripped off the label.  i've had problems with meds in the past as far as side effects and asked why he did that and he just smirked and said that tylenol and motrin have side effects too but most people don't read them.  he wanted to know why i wanted them.  instantly i thought he thinks i'm a hypochondriach. 
i stopped going to him after that.  i did try thr lyrica and it gave me bad headaches.  then my dr gave me cymbalta to try, it made my throat feel tight and i felt nausious.  now she may be sending me to a rhumy.  i still feel like it could be ms, maybe at the beginning the tiredness and stuff was chronic fatigue but what is happening now is something else.  i feel so confused right now.  i don't know weather to find a new neuro or what.  i know i can't stand this anymore.  i have 3 daughters 16, 10, and 6 and there are days i feel like i can't do things for them cuz i'm so exausted or am in so much pain.
just to take a shower wears me out.  i went to the store the other day and couldn't take it and had to leave in the middle.  the car we were driving had no air in it and it was really hot that day and by the time we got home i had to go to bed.  i hurt so bad and was so tired.  i'm sorry if this seems like i'm whining, i'm just tired of being tired.  i feel like i am only existing and not living. 
my neuro never offered a lp or an mri with contrast.  he was positive i didn't have it.  i am dreading school starting cuz there will be so much more to do and i feel like i can't even do what i need to now.  my husband works alot and we moved here to indy for his job a yr ago.  all or family is in mi so i don't have much help.  i need answers.  i feel like if i only knew what this was maybe theres something that could help me have a better life. 
any advise would be great.  any prayers would be good too.

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 7/21/2008 12:37 AM (GMT -6)   
Hey Domanique

Wow...what a history. I'm so sorry for all the pain u've had and still have. U'r symptoms do sound like ms symptoms, but as with most everyone esle, also could be a number of other things. To have had three neuros (I think i'm recalling that correctly) who said no ms, after mri's and a lp, would say to me that this is most likely not ms...BUT something is certainly going on! Keep pushing on and working to get answers friend. There is something happening, but finding out what that is will be challenging.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*

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