Relapse Remitting to Secondary Progessive

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Regular Member

Date Joined Aug 2007
Total Posts : 144
   Posted 7/25/2008 6:37 PM (GMT -7)   
sad  Relapse remitting to secondary progresseve.I just had a dr. appointment and was told that I am moving towards secondary progessive because I dont seem to be getting over my flares.I can feel myself getting weaker and all but I still blame it on the stressful year I have had....I guess if I am taking the next step I am lucky to have made it for 24 yrs. where I am now....Another appt. and mri is coming up in april.But in the mean time I have to use walkers,chairs, scooters and stairlifts..Even hands rails...I know it could be worse....I think about tysabri but I think I may have waited too long.We could up the steroids but that could damage my bones and with the falls I have  had I cant have a break...Really I was just venting thanks for listening.barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 7/25/2008 7:22 PM (GMT -7)   
Hey Pokey

Geesh, i'm sorry friend! U'r right tho, to have come 24 years as RR is fantastic! Hang on friend. U'r stressful year could very well have something to do with the symptoms u'r feeling. U'r doc will be able to help u in knowing what u'r dealing with, but if u can possibly lower the stress level u may feel some relief over time. Take care friend and let us know how the next appt and mri's go. Thanks for this update!
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*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

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