Happy to share my story, though I often feel weird cos it doesn't "fit" the expected norm of definite routine... lesions and obands. I wish it did sometimes but then what difference would it make? The symptoms and pain and all the other crap is still the same! I've only been around here about
the last 6 months since my dx... however, to answer your question, yes, I've been dx'd without the lesion and Obands based on a very lengthy monitoring by my neuro (every 2-3months), multiple labs to rule out everything else possible and then issues that confirmed it were:
- atypical migraine headaches
- extreme spasticity (I had no clue what it really was til now that it's over and pretty much gone, I realilze it was a "flare" of that!)
- Multiple numb spots from both my feet, to my right knee, to my left arm, to both hands, to my right upper quad of my face,
- NO leg strength, no stamina, no grace or balance
- Eye Tics (uncontrollable jumpiness) - comes and goes
- Drunk walking (I regularly flunk that test these days)
- Intention tremors after using my right hand to spray paint anything for more than 45 minutes.
- the neuro sensory test reflexes react opposite of what they're supposed to in my feet
- Nerve conduction test showed the nerves were smaller and slower reacting than normal in my legs
- debilitating narcolepsy sleep-like exhaustion... incredible fatigue I couldn't figure out how to handle
- Chronic digestive tract and UTI issues... trying not to be graphically gross here but loss of sensation causing great embarrasment
and the clincher was my right eye- optic neuritis in March, diminshed color reception, peripheal motion sensation preception that wasn't really there, halos in the lights at night, poor night judgemnent and dept perception.
After over 12 yrs of these nuisance symptoms happening slowly (and everyone around me pushing it off on my age, my thyroid weight gain, my grief periods, my whatever excuse they figured was better than me knowing something wasn't right), then the lst 2yrs of everything suddenly compounding along quite quickly, even without the lesions found (he says they are there, the MRI just hasn't seen them yet- may try the big magnet eventually 3.0) his initial thought was MS and his conclusion is MS. Only now we've concluded it's "benign" and I'm most likely in the 12-15 yr stage of the 15-20 yr window most "benign" MS patients have with it. If I'm very blessed, it'll stay benign. If it exacerbates to more and more flares, then I'll be on Copaxone very soon. For now, we've agreed to monitor it another quarter then compare notes again next visit.
That's my story. It's hard, it's frustrating and it's a devilish disease. We've tried to make it fit anything else but it won't... and funny as it sounds, even after I got the "answer"... I started thinking well, maybe he's wrong after all and we missed sometihng... not so. On top of all this though, we are monitoring my pituitary for a potential tumor... should know more on that next visit.
Fear knocked ~ Faith Answered ~ No one was there! :)
~ Ephesians 6:13 ~ * ~ Psalm 27:1 ~