Hey Gretchen, sorry about that... yep, had the appt and yes, we're on the wait and see. His thing is this: one more flare in the next quarter and we will go on copaxone. That is the one he wants me to start on. He feels I am in the benign MS regime... kinda "rare" but my symptoms all run the gamut of that path, and the timing is showing its progression coming up faster towards more aggressiveness. So, with that in mind, if I have another flare (which honestly, guys, I did not know what it was until NOW when I can honestly say I feel so fantastic out of that spasticity flare, it's so weird to know the difference now because it went on for so long, I just thought it was going to be life with MS for my right leg!) then he really wants me on Copaxone.
I am the resistant one. I know I shouldn't be and I had lunch with Olivia's mom and it was wonderful to meet and she's awesome about the Copaxone so when I decide to go on, she's a great support for it. But we meet again in November and by then will have more to discuss.
We are also pursuing the enzyme panels on (I hate this part but my "word fishing" and mind blanks brought this about) a dementia panel, plus my adrenal deficiency levels for the cortisol to be sure the pituitary isn't growing that potential tumor we suspect. So with the complications, we're in the "wait and see" mode, he's never been one to charge without all the observations in effect but his main rule is: first issue, first flare, call me immediately, I want to know and see you. So I'm really good with that.
MS is such a wickedly fickle disease... as displayed by my lengthy road to get to this point. Even now I queried him on his dx and we reveiwed all we've done, he says there's not much else he can turn to for another dx. So I trust him. I just think the waters muddy with the pituitary problem too. If the pit MRI's were clean, it'd be alot easier to just charge forward. But the pit doesn't have anything to do with the limb/leg/spasticity numbness etc... that cause most of my migraine and weight and appetite problems.
for now I'm enjoying the quiet MS time... and having folks say, my you look great! And I feel great too!
What a change!
PS he's also switching me to zanaflex off of flexeril but I haven't had a chance to fill the order yet... so don't know how that will go yet, and he took me off the bacoflen as it didn't affect me at all.
Fear knocked ~ Faith Answered ~ No one was there! :)