Hi, I am new to this board and on July 4th I was diagnosed with Optic Neuritis. I went on Prednisone and the next week had a flurry of symtoms that were all MS-like, including weakness/numbness in my left leg and arm, hot/cold sensations, a little vertigo. My spine drives me absolutely nuts tingling. Then the weakness cleared up and I started getting a little off balance. But it is only slight. I am still having trouble.
My fatigue is so debilitating that some days I can hardly take care of my young children. I should add that 7 years ago I experienced numbness in both of my feet and tingling in my spine, and it lasted several weeks. I never got it checked out. I also had another episode 3 years ago with numbness in my left leg, but it only lasted a day. And extreme dizziness during one of my pregnancies. (lasted a day)
I have had a clean brain, spinal, and neck MRI. I have met with a neurologist who says I only have a 20% chance of developing MS. He has good credentials, but I don't know how much experience he has with MS. I have read a book on Multiple Sclerosis cover to cover and I feel as though it describes my life.
My doctors don't seem real concerned, and keep going back to that 20% number. I understand that is the stat for people experiencing optic neuritis with a clean brain scan, but what about the other symptoms? I have already been tested for Lupus, Devics disease, my thyroid has been checked. They don't really want to hear from me until these symptoms stop and it happens again.
In order to get a better opinion, I will probably have to go out of town, out of network, pay out of pocket. Not mentioning that I have 3 young children and will have to find a place for them while I do all this. I would go if it is worth it, but without a single lesion can anyone really do anything but wait? And even if (long shot) I get diagnosed, would someone without lesions be put on the meds?
Thoughts? Thanks in advance.