Well good morning to all.....yes I have been away for awhile - took three weeks and chilled, relaxed, and did some fun things.....so all is good.
Kate7 - I am no docotor, but according to my neurologist, the interferon drugs and the copaxone are exactly made for people like yourself......early stage of the disease. the whole idea is to keep it that way - and as reported for instance for Copaxone, it more or less changes the chemistry of the imune system so that it does not do bad things to your CNS, instead do good things. The whole idea is to slow down the rate that your immune system is attaching the myelin sheathing - and this is done by or at least is suspected to be done by these various drugs that are being offered.
So the longer you wait, well, the more time you are giving your ammune system to do its nasty deeds. So I would have to suggest that by your doctor suggesting that you wait to go on a drug trreatment, is a bit off track here. I think everyone else who reads this will definately agree.
The fatigue is something that does interfere with daily activities - and it is not just getting tired, it is similar to your body shutting down. I can be going along just fine, then all of a sudden, my head gets foggy, my vision sometimes gets blurred, my fingers begin to get numb and tingly, my neck hurts, I feel generally ill, and I turn around to see which truck it was that just ran over me. I try to catch it before all of the above kicks in, and take a nap.....I wake up and feel pretty good again, but if I leave it too long before taking a nap, well, they symptoms may not all to gether go away for that day. And the amount of sleep that you recieved the night before has nothing to do with the fatigue that you may or may not get the next day. I have had nights where sleep time was minimal, yet the next day I did good..there has been vise versa situations as well.
The heat.....oh yeah, if I get too warm, I get dizzy, fingers tingle, get stiff, and fatigue sets in, etc etc. I find if there is a breeze for me, it helps lots, as it seems if I can keep the surface termperature down, I am OK.....now I read something written by one of the top neurologists who is part of the Canadian MS Society, and his paper reports that the heat sensativey in part is due to remylination - which according to him, is very heat sensative. So I gathered from that, that the copaxone has slowed things down enough to allow time for mylination?????? Maybe, who knows...
Anyhow this started to be a response, but now it is a small book....
So hope that some of this information helps....and you have a wonderful day
Gary PS get on a drug treatment as soon as you can!!!!!!