I"m so sorry for u'r dx. I've been doing some research all afternoon and have found lots of info explaining what this is, but not any real support groups. Have u tried checking with u'r doc's office or the local hospital to see if there is a support group nearby u? I suspect this is not going to be a dx that many get and thus u may not find lots of support groups, but maybe one that is close enuf to u to justify u'r travel there? Take care and please stay and post as u'd like and make u'rself at home here. This is a great group of people who will do all they can to help and support u where needed.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*