Waiting for results of Lumbar Puncture

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healing spirit
Regular Member


Date Joined Mar 2008
Total Posts : 177
   Posted 9/5/2008 8:29 AM (GMT -7)   
I normally post on the Fibro forum and am new to the MS forum.  I am looking for information and support.  I was diagnosed with fibro some time ago and put on Lyrica.  I started to get that tingle in the left side of my face so they took me off the Lyrica.  When the tingle didn't go away, I was referred to the Neuro.  I had a good exam so they did an EMG and Ultrasound of the carotids.  All good.  The doctor said to ease his mind and mine he ordered an MRI of the head.  The results came back with 2 spots looking suspicious for demylenation but nothing clear cut.  I had a lumbar puncture a week ago Thursday along with a trip to the hospital for the spinal headache and blood patch fix.  I now have to wait until Sept 18th for the results.  Here is my question....my tingle has moved to being in my mouth, on my tongue and lips sometimes.  This is very scary and gets worse when I am stressed out about it.  I know this can be part of MS?  Could it be something else?  If I have MS and start the meds, will this go away?  I am hoping taking the meds makes the symptoms go in remission.  It has gone away for a period of time but returns.  I have never had this before 2 months ago.  Hopefully someone can tell me something positive.  I am feeling very stressed at this point.
 
Thanks,
Cindy

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/5/2008 4:22 PM (GMT -7)   
Hey Cindy

I'm sorry for what u'r going thru. Geesh...all u need is to add ms or anything to fibro. Unfortunately u may not get a bottom line answer with the spinal tap and mri's. If ms is there AND if there are visible lesions and the proper protiens in u'r spinal fluid, then u could be dx'd with ms. However, u may find that the answer takes longer and many more tests to find. Likewise, the numbness may or may not go away with treatment from one of the ms meds. I've had that numbness in and on my mouth and i agree, it's not fun and quite scary. The numbness could go away on its own at any time, but it may last awhile. There is no sure way or time in which that could happen. The ms meds only offer to try to slow down the progression of ms and hopefully lessen the severity and frequency of flares. Have u thought of the possibility of it being related to anxiety? The coming and going could indicate that. There are lots of ms mimics. U might try googling 'ms differential diagnosis' or 'ms mimics'. U should get lots of hits. Hang in there friend. I know i sound less than hopeful, but its not hopeless. Its just taht it could take awhile to know whats happening and lots of things need to be ruled out before that final answer.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
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healing spirit
Regular Member


Date Joined Mar 2008
Total Posts : 177
   Posted 9/5/2008 4:58 PM (GMT -7)   

Rhonda

Thanks so much for your post.  Yes I am currently being treated for anxiety with Ativan.  I have tried 3 different SSRI's with bad reactions.  I have terrible medication sensitivity.  Ativan works for now.  I will eventually have to try something else as Ativan is a short term fix only.  I have been told this symptom could be stress related.  I have some numbness off and on in my left foot but that has been related to spondylosis at L5 and confirmed with the EMG I had.  I have tightness under my right rib cage and sometimes rib pain.  They checked my gallbladder and found a polyp so out came the gallbladder.  The tightness is still there.  I have had Cat Scans, MRI's and everything else under the sun.  The Neuro was the last stop.  Alot of my symptoms are made worse due to the fact that I am a massage therapist.  The work I do and pressure I use on people all day has an affect on how I feel.  I actually use heated rice bags on my ribs for pain.  I have heard that if you have MS, heat makes stuff worse.  The heat helps my fibro pain.  Anyway, thank you for the post and support.  I will be researching and reading before my appointment on the 18th. 

Thanks again,

Cindy


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3547
   Posted 9/6/2008 7:25 AM (GMT -7)   

Hey Healingspirit,

I am sorry that you find yourself here worried and looking for answers.  I hope it all goes well at your appointment.  Lesions can be caused by things other than MS so there is still hope that you don't have this disease.  It is a very good sign that heat helps your symptoms.  I have never heard of that with MS.  Most of us cannot stand heat, it really makes our symptoms much worse.  I am glad you posted and look forward to getting to know you.  I hope you let us know how you are doing and the results of your appointment on the 18th.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


healing spirit
Regular Member


Date Joined Mar 2008
Total Posts : 177
   Posted 9/6/2008 10:08 AM (GMT -7)   

Hi Gretchen

Thanks for the post.  It's funny they haven't said what was on the MRI was lesions.  The radiologist read it as 2 spots suspicious of demylenation.  The neurologist never said lesion either so we will just have to wait and see.  I use the heat on the right side of my ribs and it does help.  I never use it on my neck as it makes me have a headache.  For the neck I use cold.  The only other tingle or numbness I have had over the years was a patch on my right side next to my mid section.  A different neurologist at the time said whatever it was would probably go away and it did within a couple of months.  I have the burn thing sometimes in my hands and feet.  Makes me feel like I was hit by a truck, but this can be from the fibro.  The hardest thing about any of this is keeping ahead of the game mentally. 

Again I thank you all for your input and I will surely let you know what the results are on the 18th. 

Cindy

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