Nonphysical MS stuff

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Regular Member

Date Joined Aug 2004
Total Posts : 274
   Posted 9/8/2008 8:06 AM (GMT -6)   
pain here, cramps there, listing to one side or another, eye stuff... all, unfortunately part of ms. at times, however, it all comes crashing down causing me to plummet into the depths of depression and isolation. have found myself there again and it hurts as much as the ants biting my leg. came crashing down on me that i have an incurable illness forever. threw fear on my ever having a future doing anything. yes, i take wellbutrin, cymbalta and my favorite seroquel. nothing seems to be helping much. lot of trouble sleeping. cognitive troubles galore... like ran red light without knowing why, forgetting what i'm looking for... yes, have these usually, but more so now and different symptoms. couldn't walk part of a day last week because left (ms) leg was totally numb. none of the symptoms are all the time, nor do they last. some, like the aants just pass through, but lately they're all over both arms, my neck, face and non-ms leg, but not all at once and not for a long time. sigh. does it ever get better, not worse? linda

Motown John
Regular Member

Date Joined Jun 2005
Total Posts : 475
   Posted 9/8/2008 8:39 AM (GMT -6)   
Monday a.m.
Dear  Odettesmom:
I am sorry that you feel the way you do.
I am very fortunate in MY MS world.
 I am married to an INCREDIBLE.INCREDIBLE girl.
I have an INCREDIBLy supportive immediate family.
Have you ever tried checking into programs your state MS Society might have? 
I know the Michigan MS Society has discussion groups...
And believe me....there is always someone in a worse way than you are....
Tonight we have a chat sesion which is kinda' fun.
Right everyone?  Motown  John
DX'ed June 21st, 1987

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 9/8/2008 9:03 AM (GMT -6)   
Hey Linda

I'm so so sorry for how u'r feeling! I know how hard depression can hit and how badly it hurts. beyond the physical that u can somehow seem to manage thru, u just can't seem to get away from or always manage thru u'rself..depression. We all need others to help us. I do. John brought up an excellent point. Please do join us for chat tonight. It is fun, yes, but also theraputic. It does the spirit such good to talk. We are here to support u friend. Please do lean on us and if u can, just come talk to us. Yes, in time many do find that these symptoms do improve. There is hope. Hang on sweet friend. U are not alone.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 9/8/2008 7:46 PM (GMT -6)   

Hey Linda,

Unfortunately you are finding one of the lovely side effects of suffering from a chronic disease.  That is why we are here.  I hope you feel better real soon.  Be sure and talk to your doctor if it lasts more than a few days.  I am right there with you.  I can be doing just fine and managing all the residuals and junk and then I get slammed with the realization that this is my life forever.  It can be really really hard.  Hang in there girl.  Keep us posted.

Gretchen       co-moderator MS board       diagnosed with MS July 2006

Regular Member

Date Joined Jun 2008
Total Posts : 100
   Posted 9/9/2008 2:29 PM (GMT -6)   

Hi !!!!  I'm Peg and if you ever need to chat just give me a time and I will be there if possible.  If I can't be there at that time we will FIND TIME.  Feeling rotten is miserable. I know.  Talking helps one to forget and helps in getting back to feeling better.  We can go into the MS chat room and just air out whatever we need to air out.  It doesn't have to be Monday or Posting.  We can go there anytime we want.  This HealingWell Site is a great place to come anytime and to find support is ALWAYS a must.

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 9/10/2008 8:28 PM (GMT -6)   
Hi there Linda,
I am so sad that you are feeling this way. I really think it will pass for you tho, hang in there, ok?. I get like this too. When you feel down and out and have pain all over it hits ya and you realize that disease just plain old sucks and that you want to give it back. I try, to take my mind off of it, by reading or watching a funny movie or show. It is how i try to take me and my mind somewhere else so i dont just sit and dwell on this stupid disease.. Laughter works well. We are here for you. Take it easy.
Dx MS December, 2006
Started Tysabri March, 2008
Baclofen/Zanaflex Combo,
Cymbalta and Provigil

Regular Member

Date Joined Aug 2004
Total Posts : 274
   Posted 9/14/2008 10:29 AM (GMT -6)   
thank you all so much for your understand and comforting words. you made me realize that the only thing permanent about this disease is having it, not the symptoms. did call neuro who told me that he has had more calls lately than ever before because of the wild swings in weather hitting us in the northeast. rode out the psych stuff after venting about it. symptoms continue to crop up, but i ride them out w/silly tv or book and pain pills. went to playoff of our aa minor league baseball team, trenton thunder, last night. was okay until into the 7th inning when both legs acted up w/feelings of veggie peeler taking off layers of skin, etc. walked like i was totally drunk. again, friends came thru for me and helped me get up some stairs without falling. it all comes down to friends being the best medicine for ms. symptoms come and go, but special people are always there. linda

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 9/14/2008 12:52 PM (GMT -6)   
AMEN!!!!  You said it, Linda!  We can do anything with the love and support of others.  That is what we need everyday.

Gretchen       co-moderator MS board       diagnosed with MS July 2006

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