dizziness with MS

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sasey14
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/11/2008 6:02 PM (GMT -7)   
Is there anyone out that that experiences dizziness with Multiple Sclerosis? To explain the dizziness the room spins around me and at times I lose my balance, this mainly occurs when I am in flourescent lights. I was diagnosed with MS 7 yrs ago but my MS dr doesn't think this is assicociated with the MS. I have been off work now for 3 mths because I cannot tolerate the lights, I am fine at home and in natural sun light. I have been seeing a migraine specialist but he hasn't seem to come up with any fixes. Is there anyone that has any advice for me?

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/11/2008 7:37 PM (GMT -7)   
Hey Sasey14

Welcome to the board. Yes, dizziness, or vertigo, is very common with MS. My best friend's primary symptom is vertigo. The lighting issue my give some insight...no pun intended...to u'r Neuro Opthamalogist. Have u seen one?? It couldn't hurt to at least check. Take are and let us know how this goes and if u see the N.O. let us know what he finds.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
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Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 9/11/2008 9:21 PM (GMT -7)   
Hi Sasey14,
 
Certianly dizziness and vertigo can be caused by many things but it is so common in MS.  I am wondering if you asked your doctor what made him so sure that it was NOT MS.  Do you know the location of any of your lesions?  If you have one or more on the cerebellum or the brainstem, that can cause vertigo. 
 
I have never found anything that helps with the vertigo.  I take meclizine and valium if I am nauseated.  I have gotten used to it after 2 years.  I just put up with it.  It is my "normal".
Gretchen       co-moderator MS board       diagnosed with MS July 2006


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 9/12/2008 7:33 PM (GMT -7)   
Sorry you are having that- not a fun problem for sure.  Like Gretchen mentioned, lesion location can play a factor.  I have a brain stem lesion that caused the vertigo and balance issues at first.  Rarely get it these days and so I'm fortunate in that sense.  But the fluorescent lights trigger migraines for me (along with the nausea and vision problems).  I think that breaking apart my migraines from my MS symtpoms is impossible.  Neurologists and other docs, seem to want everything to fit in neat little boxes but they don't.  It's all connected!  I requested that two sets of fluorescents over my cubicle be removed and also for a flat screen monitor instead of the CRT (big boxy ones) because they flicker too much also.  If that's your trigger for it, is there a way they can make a reasonable accomodation at work?  Willow

sasey14
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/14/2008 7:37 AM (GMT -7)   
Thanks for the advice, they have removed the lights above my desk, but it has not worked. Im still surrounded by them. Right now the drs are leaning towards migraine and want me to be on another anti seizure med which I am already taking a high amount of neurontin...I don't know how much more my body can take! It completely sucks that I have to live feeling sick everyday of my life!
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