Palatal Myoclonis anyone?

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New Member

Date Joined Sep 2008
Total Posts : 1
   Posted 9/14/2008 10:00 PM (GMT -6)   
I'm new here and have not been diagnosed w/MS.  I'm a long time sufferer of migraine headaches and last year was very sick with strange neuro symptoms. Dizzyness among the worst - I felt drunk or "high".  Lasted for a couple months.  Clicking in my ears that could be heard by others.  After several MRIs (all clear) I finally found a DR that figured out I had what's called palatal myoclonis - spasms of the soft palate.  These were happening pretty much 24 hours a day.  ALong with lots of severe migraines.  They think I had a touch of encephalitis at the base of my brain and that was the cause.  I'm currently being treated w/ Depakote & recently added 1/2 mg of clonopin. My dizzness went away & my cheif complaints is just maigraines. I keep getting what my neuro refers to as flare-ups.  I've just recently had a flareup of migraines - 4 w/in 7 days.  I'm also experiencing a strange warm feeling in my right foot, mostly in the ankle, travelling up the leg a bit - not painful tho.
Since childhood, I've gone through periods of achy legs - what I was always told were growing pains - which carried over into adulthood.
I've also been diagnosed w/ low pressure glaucoma.  My nerve fiber layers shows signs of thinning. I'm only 46, young for glaucoma.  I was wondering if any of this sounds familiar to anyone?  Since finding out that myoclonis can be an MS symptom, I've wondered if that could be me.
THanks for any response.

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 9/14/2008 10:43 PM (GMT -6)   

Hi ljg,

Welcome to the board.  I have never heard of palatal myoclonis.  It is crazy that other people could hear it!!!!! Wow!!! That is fascinating.  So anyway, I am sorry you are having a tough time right now.  I can't tell you whether or not you have MS obviously.  You definitely have stuff going on the we can relate to. 

Are you seeing a neuro?  The fact that you have clear MRIs is a good sign.  It is quite rare to have clear MRIs and still have MS.  Some do get a diagnosis but it is not common.  I am sorry I am not being very helpful.  I do wish you very good luck in your quest for answers.  Please post here as often as you wish.  You are welcome here and I am glad you found us.

Gretchen       co-moderator MS board       diagnosed with MS July 2006

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