I have kinda been in the dumps. First of all I don't want to sound like my familiy is mean, but I am feeling like this recent diagnosis of MS seems to be more of a deal to me than to my loved ones. Am I going crazy?
I got some info in the mail a few days ago from the MS society, I had signed up to participate in the 'power is knowledge program', where they send you CD's and literature on MS to help you understand things. I wanted my husband to read it, but he just ignores it. I had hoped by his reading it he would better understand MS, since I barley understand it all myself.
Next week I go back to the neuro doc and my husband syas he wants to go because at this appointment, my Dr. is going to determine which med I will be on. My husband has not wanted to go to any of the other appt.s with me....now I am feeling bitter about it. My daughter in law ( who is also a nursing student) has a grandparent who has MS ( has had it for 30 years) and is not on any meds and doing fine, she says. She makes statements all the time like this is no big deal and I think my husband is now brushing this all off and I am feeling like what I am going through is not significant, if you follow me.
I told them both that MS affects everyone differently and while I am glad her grandma is doing well, I am in the begininng of all of this and I will go on the meds that may slow this all down becasue I want to not progress anymore than I have to. Now they think I am going overboard, becasue there are days I look and feel perfect and then there are days my balance stinks and my muscles twitch to the point of nearly crying...and so on.
Anyway, wanted to know if I am alone in this area. I feel like just going to my next appt. alone and just keeping everything to myself and not talking to them anymore about this MS stuff. Here I was actually GLAD to FINALLY know what has been making me feel like crap all this time and now that I know...and they know....I think they feel this is no big deal and just forget about it. Well it is a big deal to me! I am especiually upset about hearing about this 'grandma' whos doing so well without meds! Good for her! Sorry, needed to vent. Any advise?
other than 'get over it' which is all I feel I am hearing around here?~Katie
What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
Diagnosed ~ August 2008