Results of MRI back...Clean MRI

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flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 9/16/2008 9:05 AM (GMT -7)   
I've got good news: I don't have a brain tumor and according to my (ex) neuro I don't have MS. He ruled that out because my MRI came back good. As you know, I have severe Carpel Tunnel in my right hand and mild in my left. So I bring my cute little purse which I crocheted and felted with my SEVERE c.p. hand and the doctor says, "nice purse." I say "Thank you. I made it myself "- with my Severe Carpel Tunnel hand. He told me there is nothing neurologically wrong with me. I asked him about the vertigo and walking sideways. He said he didn't know. So I leave the office, get into my car and cry. I'm back to square one! I got really, REALLY mad because I don't have any answers and it's clear my Ex-neuro is not going to pursue this because I had a clean MRI and EEG. He did not schedule a follow-up in six months or whatever.
I have done enough research on my own to know what MS looks like and feels like from a personal perspective. I don't want to have something wrong, but it's obvious somethings going on. He couldn't explain me feeling like I was going to pee in public either. He said, " Well, have you lost control?" I said, "No. A little dribble but not yet." He dismissed that too. I guess I'm going to have to pee my pants in public for him to believe me!     shakehead   
Forgive me to ranting....I'm so frustrated and MAD. Not to mention depressed. I'm ready to hear anything at this point just to have an answer. It's been five years.
 

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/16/2008 9:41 AM (GMT -7)   
Hey Flutterbug

I know u'r frustration friend. I'm in limbo as well. I"m told i don't have ms...and that's great!! ....but i don't know what i do have going on. I'm fortunate; my symptoms are all but gone. Friend, get u'rself a new neuro....have u'r records transferred and get a copy of them for ur'self as well. Go see that new neuro and tell him u'd like to est him as u'r ongoing doc and want to be able to call on him for appts as needed per u'r symptoms. Be sure he's willing to maintain follow up appts and willing to treat u'r symptoms if needed. Leave this other doc behind and be glad u realilzed this now. Hang on friend. Keep up with u'r symptoms in a journal and try to live life as much as u can. Dont suffer with pain or probs with the symptoms. Ask for and get help with that. For the time being, that may be the best u can do...and it's way better than letting this get the best of u. It'll be hard, but u can do this.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 9/16/2008 5:56 PM (GMT -7)   

I am sorry you are so frustrated.  Please be happy about your clean MRI.  I can't tell you how I hate MRIs.....they always mean bad news for me.  I begged to skip my yearly one this summer so I could have some denial about my progression. 

I know this is frustrating but it really is very good news that you have no lesions showing.  Certainly get a second opinion, if you don't think you have a neuro that is taking you seriously.  Rhonda has given you some very good advice.  Remember that if you go into any doctor saying, "I am just sure I have MS" you have a pretty good chance of not being taken seriously.  My advice is always to just state your symptoms and see what they have to say about it.  I know you think you know what MS looks like but you could be going in the wrong direction.  Researching things on your own is not a replacement for a medical degree. 

You may want to try a neuro-urologist on your bladder issue.  They can check so much these days.  They are very good at testing for and treating neurogenic bladder conditions. 

Please let us know how you are doing.  Again, I am sorry you are left with no answers.  I hope you are feeling better real soon.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 9/17/2008 7:41 AM (GMT -7)   
Thanks for "listening". I appreciate your advice and will probably look for another neuro. But I may wait a while, meaning a few months to see if I have anymore new symptoms. I'd hate more than anything going through this whole thing again to find out they still don't have a dx. Of course, I'm grateful for a clean MRI and it could be worse, but I think and fear I am on a long road to finding a dx. from what I've read about how hard it is to finally reach one.
Bless you all. Thanks for your support.
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