Minocycline Study

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Date Joined Oct 2007
Total Posts : 61
   Posted 9/18/2008 2:10 PM (GMT -6)   
The Canadian MS Society is currently studying the use of Minocycline (a low cost antibiotic) to be used as a possible treatment for MS.  They are studying the drug administered on its own and also in conjunction with Copaxone.  When I looked for more information on the internet, I found information as far back as 2001 that showed in pretrial studies Minocycline reduced brain lesions up to 84%.  I just wondered if anyone else had any information regarding this, or if any MS patients are on this medication.  I have been diagnosed with both Lyme Disease and MS and have currently only treated the Lyme (with antibiotics).  When I am on the antibiotics, I FEEL so much better.  However, each year I have continued to develop new lesions on my brain MRIs.  (I just went for my yearly brain MRI today--wish me luck!).  I also saw my neuro last week, and when I asked him about the possibility of prescribing Minocycline, he said he would not be willing to do this until the study is completed with published results.  In the past I have been on Minocycline for the Lyme and felt so good I stopped the treatment after a couple of months, then relapsed and am now back on other antibiotics.  So confusing, but anyway just wondered if anyone with MS has heard anything about the use of Minocycline for MS. 
As a side note ... I vowed to never have one of those "For Dummies" books on my bookshelf, but I broke down and bought "Multiple Sclerosis for Dummies," and found this to be very informative.  It's a pretty upbeat book compared to some of the others I have read.  Two of the authors are members of the National MS Society.

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Date Joined Jan 2007
Total Posts : 3571
   Posted 9/18/2008 6:33 PM (GMT -6)   
I love MS for dummies!!!!   It is one of the first MS books I purchased.  I agree with you, it is a good one!!!  I have heard of others on minocycline.  It has been a while and I believe I remember minocycline being used in the UK.  I am not sure.  I will poke around and see what I can find.  My neuro is usually good about questions like that. 
Thanks for posting.  Good luck with your MRI results.
Gretchen       co-moderator MS board       diagnosed with MS July 2006

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