How Can I help My family?

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jonb
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/25/2008 10:33 AM (GMT -7)   
My father has had MS for about 12-14 years we think.  It was misdiagnosed for years as some form of arthritis before he found a doctor who put it all together.  As you are all aware, I have for years now watched the ebb and flow of the illness and felt powerless.  When I was a child my dad ran two miles everyday, did 1000 pushups a week(I counted), and he was thrtty feet tall.  To me he towered over the earth and all I ever wanted was to be like him. 
 
He and my mom own and operate an auto business here locally.  He to this day still works when he can but his illness seems to be getting worse faster than it has before.  His excacerbations look to be getting closer and closer together.  The economic downturn has had a drastic effect on business and they have been doing a third of the business they normally do or less.  He and I have been talking and it is very possible he may lose the business.  he is trying to hold out for things to get better, but even now he is choosing between peronal and business bankruptcy. 
 
If the economy was doing better I would htink he could ride htings out and when things picked up he could bring in temps or new emloyees.  But his business flow is so unsteady due to the economy.  I work for him on Saturdays or a night or two in the week when he gets busy, but lately it seems we do more on Saturday than he does in a whole week or two. 
 
He has a high school degree but no college.  He is truly a self made man.  My mom does have a degree from U. of Maryland in Sociology and some credit towards her Master's Degree.  They ran the business together to provide a good home environement for me where someone would always be home.  My dad right now has no health insurance and I believe he just let go of my mom's too due to finances.  Unfortunately I don;t believe they would qaulify for Medicaid because they make too much.  but, if the business falls under the economic crisis, then they would.  Maybe that;s the silver lining. 
 
My dad has management and business operational experience obviously, but no degree.  He has limited computer skills although he learns very quickly.  My mom is fairly well versed with a computer and does have her degree.  I was thinking a career switcher program into education would be good for her, or even going back into social work and counseling.  But waht about dad?  What sort of jobs could he look for? 
 
I have felt powerless for so long, and just wanted to at least try to see what is out there for them as far as careers or help, and to see what I can do to help them.  Any help is appreciated.  Thanks in advance.

Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 9/25/2008 6:04 PM (GMT -7)   
One idea is for him to get registered with his local Department of Vocational Rehabilitation office.  An MS chapter could help you find it.  They provide free testing, job re-training and other assistance to those that are disabled but could still work if they can get into a different field.  They helped me to stay on at my current job with some accomodations. 
It seems something for one of them that has health insurance would be very good.  It's a tough thing.  I think the National MS Society also has information on owning your own business, but I don't know the extent of their resources.  Good luck!

eclipse26
New Member


Date Joined Oct 2008
Total Posts : 3
   Posted 10/3/2008 4:49 PM (GMT -7)   
jonb,
 
Your message caught my eye and I think you are a very sweet man for wanting to help your parents.  If you see your father getting worse I can almost guarantee it sounds like he's got a lot of stuff he's trying to deal with and it's stressing him out.  my advise is to get him moving with the state disability department and if he was in the war at all also have him go down and apply for benefits for health and income.  If your town has a state insurance program like we do in Oregon if they don't qualify because they make to much believe me I am there right with them.  Is your father on any shots??? If not I could suggest some people that could help absorb the full amount of the cost which Im sure your aware is very expensive $2000.00 for a months supply.  I get mine paid for and I have no insurance.  The company I went through is called N.O.R.D. or (National Organization for Rare Disorders)  thier website is http://www.rarediseases.org  I don't know if they could help him but they may be able to absorb some of his costs if not all.  I hope some of this information was helpful and if you'd like to pick my brain please feel free to contact me.....God Bless you and your family
 
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