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Tá mé breá
Regular Member

Date Joined Aug 2008
Total Posts : 140
   Posted 10/1/2008 6:58 AM (GMT -6)   
hello everyone. My name is Marie. I've been on the Lupus board for a while but thought I would pop in over here. to make a long! story short, I have a brain MRI today. due to symptoms and tests so far, my dr believes that they are caused either by Lupus of the central nervous system and vasculitis or that I have MS. I have been having numbness in my limbs usually on one side at a time and worse on left, intention tremors (hands and lips tremble on small motor movements but not at rest) My thighs shake sometimes as well. numbness and tingling in hands and feet that is worse after activity. headache and I get the electric shock in my brain if i put my head down and to the left. when this happens my vision twitches ??? every thing looks like it moves momentarily then comes back. also I get a zap, zap , zap in my brain sometimes and my ears go fuzzy when that happens. I also have burning pain beneath my skin that comes and goes. skin feels numb, pain is deep under skin, then it itches like crazy. because I can't feel myself itching I bruise and tear the skin. I've been mostly in bed since May with severe fatigue along with all this. Symptoms, at a lesser degree, started 5 years ago. For the last few months I feel like I'm walking on fake legs. even when I can feel them, they do not feel as if they are under my complete control. very odd sensation. it feels like a permanent case of my legs falling asleep then trying to walk in the pins and needles stage. my legs bounce up a little with each step!

anyway too long of a post - just wanted to intro before I bombard you all with questions and quandaries!

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 10/1/2008 10:00 AM (GMT -6)   
Hey Marie

Welcome to the board! I'm so sorry for all this! I do hope it's not ms. I posted to u on the lp/headache thread, but wanted to come welcom u to the board and let u know we are here to support u and help with anything we can. Please let us know how everything goes for u today. U already know how wonderful HealingWell is, but u haven't yet seen how great the people of the ms board are! Lean on us all u'd like and need and we'll be here for u. Take care friend.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

Tá mé breá
Regular Member

Date Joined Aug 2008
Total Posts : 140
   Posted 10/1/2008 2:18 PM (GMT -6)   
Thank you Rhonda. by the way I love your quotes!
Marie-43 yr old mother of 6 grandmother of 1 going on 2!
dx 2008 - myelofibrosis - possibly autoimmune, osteoarthritis in spine, testing for possible MS or CNS lupus / vasculitis. family history - mother RA/Lupus maternal gma - lupus.
rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, b6, b12, flaxseed oil, C.

"All we have to decide, is what to do with the time we are given" ~ Gandalf

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