Just talk (about anything) II

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Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/12/2008 1:16 PM (GMT -7)   
In southern calif.  we are heading into fire season.  We had the infamous and horrible "santa ana" winds last night.  The wind just howled.  Our humidity is way down.  That is our recipe for disaster.  Throw in a couple if arsons and we will have weeks of fire and destruction.  I am hoping with how bad last year was, that there is just not the fuel we had before.  I am so not up for evacuating my old horse! 
 
Ok your turn!!!  What is happening in your life?  Good, bad or otherwise.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/13/2008 11:09 AM (GMT -7)   
I love this topic so much! Im sitting in our dentists office typing on my handheld that I just got to work and I get to tell u about it!! Ok enuf of this . Its hard!!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 10/13/2008 4:00 PM (GMT -7)   
Hope the fires are not near you G. I remember last year. I went away with a few friends this past weekend to visit another friend that now lives in Iowa. We were hoping that the leaves would be pretty on the Mississippi River, but they really have not changed much yet. The temperature was in the 80s the whole time, so it was a bit too hot for me.

I think I may be experiencing a flare, but I am not really sure. But I made it through another Monday at school!
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/13/2008 5:51 PM (GMT -7)   

Yay for making through another Monday!!  I wish Mondays were not so hard on you, Barb.  Can you get your schedule more evened out next semester? 

I hope you are not flaring.  I am praying and crossing fingers for you.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 10/14/2008 11:52 AM (GMT -7)   
Thanks G! I do not teach a grad class during the spring so hopefully I will be a bit less tired. I think this may be a flare as all of my usual symptoms are worse, but I still do not really know how to tell. It doesn't really matter as I am not going on steriods unless I get alot worse. My next MRI is Nov 6 and my appt is on Nov 11th.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 10/14/2008 2:26 PM (GMT -7)   
Not sure what I should talk about...but I can tell ya whats been going inside my house! Lots of conscruction!! It's driving me bonkers to have my house a mess...more like DESCRUCTION! LOL

We are converting our attic into a bedroom for our daughter Emily. Our son,Ryan will be moving into her current bedroom. His current bedroom is 1sq ft smaller then our bathroom. Yes,HUGE bathroom..but makes it very small for a bedroom. So...both kids are pleased!

We are done with all the drywall,electrial and all that boring stuff. Now on to the fun stuff like building a new staircase and painting,putting in carpet. Cant wait for the finished prodcut and to have my house back!!
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 10/14/2008 2:35 PM (GMT -7)   

Hello everyone,  Hope all's well.  I just wanted you to know that I'm having a health issure with my guts.  Was hospitalized a couple nights and am home now.  The doctors could not get through a "thickening."  So, they want to do a virtual colonoscopy.  They said that my intestines have a bunch of curves in it.  They want to make sure I'm getting enough blood flow or something like that? < LOL >  I will have the virtual one done soon.  They have me do the prep that I did for the first one.   I cannot wait to do that again.  Go Lytely .... HAHA .... they should call it Go Heavy because you have nothing left from
"pooping" so much.  They put in my papers they gave me that I have a difficult anatomy.   Oh well, it could be worse.  I love you all.  Take Care and God Bless.

 

 


           
*~*Age is a figment of our imagination*~*
 
*~*We don't stop playing because we grow old, we grow old because we stop playing*~*
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~* 
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/14/2008 2:45 PM (GMT -7)   
Hey Peg

O gosh!! I'm so sorry to hear this!! I have IBS and some issue with it off and on and just that amount of prob is tough. I can't imagine what u'r going thru! That Go Lytely junk is horrid!! I know just the process u'r talking about and i feel for u friend. I am anxious to hear about the virtual colonoscopy too! Is that the camera?? Please do come back and tell us how it went as well as sharing what u learn about the process. Take good care friend and go easy on u'rself. Thanks for this update.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 10/14/2008 5:27 PM (GMT -7)   
I'm sorry to hear about your GI issues going on. No fun,I know! I have never had the virtual scope done,but have heard lots about it! This one will be easier,yet taking the go-lytely is sooooo nasty! I dont care whatcha mix it with,it's just not right! Let us know how the virtual scope goes,I am anxious to hear....maybe my next scope for my ulcerative colitis can be done that way!!
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 10/15/2008 10:13 AM (GMT -7)   
Looks like fall is finally here in Illinois. The temp was in the eighties this past weekend, and we are supposed to have highs in the fifties by the end of the week.

I hate the prep for colonoscopies. I also have a tendancy to wake up during the procedure which is not fun. Believe me! During the last one in May, they discovered 3 polyps -- one of which was pre cancerous. So now I have to have the procedure every 3 years. I am also interested in hearing about the virtual procedure.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 10/15/2008 10:58 AM (GMT -7)   

Well, the virtual colonscopy is prep and they will put me under the cat scan and take pictures of my gut.  I know I "woke" up during the procedure when they were doing something and looked at the TV and I asked "What is that?"  lol  If they told me anything I had no inkling what they meant.  LOL  I went back into dada land.

 The weather here is gorgeous and I would love it all year round with rain when needed. 

Now, Tell me G how close to these horrible fires are you?  I have heard it in and on the news.  It has to be so scary.  I said to my husband I wonder if Gretchen is near this one. I hope not.  She said she lives in southern California.  I think? 

 


           
*~*Age is a figment of our imagination*~*
 
*~*We don't stop playing because we grow old, we grow old because we stop playing*~*
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~* 
 
 


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/15/2008 11:16 AM (GMT -7)   

Hi guys,

I am in Ohio and heard this morning we may be just 2 weeks away from our first snow. I am actually looking forward to it. I like the cooler weather we are having now. Don't much care for freezing rain or ice storms though that we get sometimes.

I have been under the weather with stomach flu, but am better today. I made a pact with myself today as well. I decided to begin a daily journal on my computer. I have not been doing the things I know make be feel better each day and decided to get off the 'poor me's' and do something about it. When I reflect I can see my daily 'things' I used to do have dwindeled away and I gotta get back on track. From eating right, moving more( within my limits), spending daily time with God ( which I really slacked on).

I don't want to go overboard, but I gotta start somewhere. I have let this MS rule me way to much and I feel as though I need to get back some control. Anyway...thats where I am today. I felt I could stay at the pity party longer, but now it is time to move on. I think its okay to feel down now and then. It actually helped me ( I know that sounds sick). I am hoping the journaling will help me see the good and the bad so I can better evaluate what I can and can't do...and hopefully accept what I need and reject what I dont.

On another note: Heres a poem dedicated to all of you who have shared and supported me in this forum:

Theres people in my life~that build me up inside~

I have never met them~but to them I can confide~

We share a common problem as our bodies have broken down~

We laugh and cry with each other~Though were all from different towns~

These people give me 'hope'~to carry on each day~

God Bless each of them~every night I pray~

Tomorrow is a new day~It may be good or bad~

But whatever it decides to bring~For this forum, I am glad~

For every person who has MS or lives in 'Limbo'.....you should know...

God gave us to each other to help the other grow~

And when you feel the storm approaching~and clouds begin to form~ smhair

Don't hesitate to come in here~We will love you and keep you warm~ turn

 


What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 10/15/2008 11:28 AM (GMT -7)   
Beautiful poem,Katie....I too am in Ohio. We are suppose to get quite the cool down tomorrow,but I didnt know snow. Yikes!! Love cool weather,I am happy at 50 degrees. But I hate the snow sludge.
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/15/2008 11:34 AM (GMT -7)   
Thank Nichole! Fox 8 news talked about the snow possibly arriving in 2 weeks, hard to believe! I do like the cooler weather though, not so darn tired as much. The yellow jackets still like it though, we have lots of them..Bad beeeeesssss,lol
What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/15/2008 12:43 PM (GMT -7)   
Katie!

Beautiful poem!!! Thank u! U are so right...no matter what is happening in the bigger pic, we must all get on with the living of this life. Sometimes that seems really hard, but if we don't find our way then we dwindle and pretty soon we are not the person we used to be and not a person we like being. Go fast and hard at living life friend. Don't go beyond u'r limits, but do live beyond u'r illness. A very precious friend of mine said 'i don't have lesions on my soul'. How profound!!! Let u'r soul live and grow and be strong. Keep God in the center of it and let Him keep u close to u'r friends...all of us here for sure want to be in that circle. ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 10/15/2008 12:50 PM (GMT -7)   

Thanks for sharing your wonderful poem with us Katie! I’m so glad you’re feeling a bit better. :-)


20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 10/15/2008 2:25 PM (GMT -7)   

Well Katie,  You sound so wonderful.  That is great.  I live in Pennsylvania and it is to cool off here too.  I love cooler weather.  rolleyes <I just ate a 9 piece chicken fries from Burger King and a large vanilla milkshake and fries from McDonalds.  LoL I deserve to me bad sometimes.  I am so addicted to shakes.  It is sad huh?

Oh, yeah, your poem is lovely and ty.

 


           
*~*Age is a figment of our imagination*~*
 
*~*We don't stop playing because we grow old, we grow old because we stop playing*~*
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~* 
 
 


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 10/15/2008 4:23 PM (GMT -7)   
Katie,

Thank you for sharing your poem with all of us! It started raining here a few hours ago, and it is also suppose to cool down. I am ready for some cooler weather too. It is not supposed to be in the 80 s and humid in mid October.

I am originally from East Liverpool, Ohio. It borders West Va and Pa. I live in Illinois.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/15/2008 5:48 PM (GMT -7)   
Katie I loved your poem.  Thanks you so much. 
 
Peg while the air quality is not great due to the fires, the fires themselves are not at all close to me.  The biggest one is about 60 miles away.  Thanks for thinking of me.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 10/15/2008 6:05 PM (GMT -7)   
Hello everyone, Dennis in lovely upstate NY...glad the fires are away from you Gretchen..

I like that idea of a virtual colonscopy....keep us posted on that. I also have IBS-C, so when it came time to flush out my system, I can't say I looked forward to it, but I felt cleaned out and now for the actual procedure they just turn off your brain and its over...

of course there is the part after you wake up and they want you to fart
It seemed like a good idea at the time


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/15/2008 8:37 PM (GMT -7)   
heheh ..........he said fart.  I love potty humor.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 10/16/2008 2:38 PM (GMT -7)   
I have never been asked to fart. I feel cheated!
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 10/23/2008 3:42 PM (GMT -7)   
I am going Nov. 14th for the virtual colonoscopy.  LOL...Before my first regular colonoscopy I ask the nurse there while I was on the stretcher or whatever they call their mobile beds....I told her I was afraid I will make a mess with the colonoscopy.  She said "you mean POOP" <<<<< (at Geisinger Medical Center they shy away from nothing...lol) and I'm like "yes."  She said no I don't have anything left to poop.  The doctors and nurses are so great there.  When I came out after the colonoscopy I was laying in the~~it seemed like a recovery room.  They were highly promoting farting.  LOL  I guess the farts would not stink if you were all emptied out.  So the farts are just air.  smhair

 
*~*We don't stop playing because we grow old, we grow old because we stop playing*~*
 
*~*Gossip SEEMS to be the staple of the human race?*~*
 
*~*Sometimes the Lord calms the storm. Some
times He lets the storm rage and calms His child.*~* 
 
 

 

 


20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 10/23/2008 3:47 PM (GMT -7)   

OH, YES, I also wanted to tell you all that they called with the appointment and said that I would get my instructions in the mail.  I found out also that it isn't going to be the Go Lytely.  She said it would be a 2 day prep.  It  was something I could mix with Gatorade or something.  Whew....I had trouble doing that Go Lytely.....Couldn't get past the smell first of all let alone the taste of it.  LOL idea

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