questions regarding my mom's disability...

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Regular Member

Date Joined Nov 2007
Total Posts : 130
   Posted 10/14/2008 11:30 PM (GMT -6)   
I need some help and aside from searching the website, I'm getting little to nothing to go on.  My mom has MS and is currently in an Oregon Hospital, because she broke her hip a couple of days ago.  She fell this time last year and ended up reciving a blood transfusion due to a blood clot in her leg.  At that time she was released to a terrible home where she finished her physical  thereapy to be well enough to go home and be with dad and have in home care come regularly.  This didn't last long for my mom and I'm not certain why. 
My question to you is, can I become her care giver and be paid to do so?  I couldn't do it and work as well.  I have a family and Fibromyalgia myself.  My dad does it all right up until this week while she's been in the doctor.  I don't know if Dad ever looked into being paid to be the caregiver, but I do know that it's getting to the point that he couldn't do it all 24/7 by himself.
Does anyone know what is involved.  Who is elligible to be a caregiver (is there a class) how much could one receive for taking care of family member.  The thought of someone else mistreating or even just doing something that I should be doing for her as her only daughter kills me. 
Any words of exerience you can provide... I'd so appreciate it.
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 10/15/2008 8:30 AM (GMT -6)   

Hey Tricia,

These are great questions!  I don't have the answers.  I am guessing what you want is social services.  You could call the local MS Society or you could call your nearby hospital.  They could put you in touch with social services.  It does seem reasonable that dad at least get a break by having a local nurse come spell him.  I have not heard of spouses being paid as caregivers but it does not seem unreasonable especially if that care is full time.

This is a really good thread and I will be searching for answers.  Sunny, could you do some research here as well? 

Tricia, please let us know what you find out and post back.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Motown John
Regular Member

Date Joined Jun 2005
Total Posts : 475
   Posted 10/15/2008 9:33 AM (GMT -6)   
Wednesday a.m.
Very good morning:
Those are wonderful thoughts about taking a larger role in your Mom's care.  You would think every child would feel that way....but...
I do not think there are any government/SS progams for caregivers.  (Instead of spending billions on the Iraq war, there should be.)
Did your mom ever work outside of home?  If so, maybe apply for SS disability?
Great luck.  John
DX'ed June 21st, 1987

Regular Member

Date Joined Apr 2007
Total Posts : 334
   Posted 10/15/2008 2:48 PM (GMT -6)   
Hi Tricia,


I will continue to look into this and post again if I find anything, but at first glance I didn’t see any specific information on this issue. I’m guessing your best bet is to contact the local chapter of the National MS Society, as they will know about this kind of service, if available.

Here is information on Oregon programs from the Family Caregiver Alliance:


Below is a link to local resources by county (Area Agencies on Aging and Seniors & People with Disabilities Services). You might also contact them and see what is available in your mom’s particular county.


This is such a difficult issue, and I really hope this is able to work out for you and your family.


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Date Joined Mar 2006
Total Posts : 2146
   Posted 10/15/2008 4:28 PM (GMT -6)   
U go Sunny!!!! :))
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
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Regular Member

Date Joined Jun 2008
Total Posts : 100
   Posted 10/15/2008 5:02 PM (GMT -6)   
Tricia~~~~ turn    You are a wonderful person to want to take full-time care of your Mother.  Not many people would be so giving.  I have no idea about the getting paid to take care of your mother full-time 24/7.  You should because you would be giving up your job and you need the $$$$. I wish you lots of luck in your endeavor to find something that works. yeah yeah  If I would by chance hear of anything I will bring it to the forum.

Post Edited By Moderator (rhondab) : 10/15/2008 4:50:31 PM (GMT-6)

Regular Member

Date Joined Nov 2007
Total Posts : 130
   Posted 10/15/2008 9:30 PM (GMT -6)   

Thank you all so much for your replies.  I appreciate your time.  My mom is getting worse and we are slowly coming to the realization that a care facility home, at least for a few weeks, is going to happen and it may be a permanent situation, unfortunately.  I will continue to be as active as possible in her care. 

Thanks again,

Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen

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