Questions about 'flairs'

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Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/18/2008 1:45 PM (GMT -7)   
Hi all,
 
As you all know I am fairly new to having MS and have some more questions. This time about Flairs'.
 
When my MS started it was with an attack of ON, although I had been experiancing many others symptoms in the past two years that my Doctor says was most likley MS then. I just ignored them cause they always went away.
 
Recently I have been having more ON, but not as bad as before. I have also been having more tingling and numbness in extremities. This stuff happens off and on. For instance I may go 4-5 hours before it returns.
 
I always thought a FLAIR was a new symptom that you never had before? OR...can old symptoms return and be as mild as they were before...or worse? If it is worse, do I tell the MD?
 
The fatigue is never ending, never goes away and it most present in the afternoons for the remainder of the day. I am on meds for that.
 
I am just confused. I know a flair has to last at least 24 hours to be MS related, but does that include flairs that come and go in that 24 hour period?..When I had a bad bout of ON in April it came and went but lasted for several weeks.
 
Now my eye hurts ( not as bad) but almost constant when I move it. My left side of my body has remained much weaker than my right, but recently, the numbness and tingling started in my right arm...and now it feels weaker. I am going to address all this with my Doctor at the next visit in December , but wanted to know your thoughts on this. Thank you everyone.
 
By the way, here in Ohio, it is a very cool day, but very sunny and the fall colors are great! Hows the weather your way? Go Bucks!  Hugs~Katie
What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/18/2008 3:46 PM (GMT -7)   
Hey Katie,
 
A flare or an exacerbation can be old symptoms cropping up.  If you have new symptoms or old symptoms that have become stronger for longer than 24 hours, then that constitutes a flare.  Some flares are really obvious and really knock you on your rear.  Other flares are very mild.  It can be very difficult to tell for some.  I have only had three flares in the two and half years of diagnosis.  Some have lots, some have just a few.  Some have really bad flares associated with disability and others have flares that are much more managable. 
 
Fares are very scary.  They indicate progression which is never a great thing.  One thing that helps me, is to remember that flares are not usually life threatening.  Treatment is not essential.  Treatment for a flare is just a matter of treating symptoms and making yourself more comfortable until you cool a bit and go back to your new baseline.  There almost never an emergency with this disease.  If you have an issue with your eyes, then quick treatment with steroids can help, but most neurologists agree that once a flare has started, that the amount of disability you end up with seems to be predetermined.  Essentially, by the time we experience new (or worsening of old) symptoms, the demyelinating damage has already happened.  Things will get worse before they get better. 
 
The only reason you should be hospitalized during a flare is if you are unable to care for yourself.  I hope this helps.  Hang in there.
 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/19/2008 2:52 AM (GMT -7)   

Thanks Gretchen for clearing this up for me. I did not want to go running back and bug my Doc and sound crazy. I hope things settle down soon. I think I will just ride this out and if the ON gets much to much worse then call. I just hate being on prednisone, but it does help the ON. I can live with the other junk for now without meds.

By the way, I like how you say 'I have no lesions on my soul and so I will live with no limits'...that is awesome! Hugs Katie


What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/19/2008 9:51 AM (GMT -7)   
That is MY quote - I made that one up all by myself.  I am so proud!!  Katie, that is pretty much what I do.  I have minor things pop up that are probably minor flares.  Right now I have this thing going on with my left leg.  I am not going to treat it.  It is a pain (literally) but not so bad as to warrant steroids (ick).

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/19/2008 11:50 AM (GMT -7)   

Well Gretchen, I have to say...I am so greatful for all your advise. You sound like a very respectable woman and you certainly have my respect and many others who come in here for help. That quote you made up is great and very good for just an all over thought on how we ALL should look at this blasted disease called 'MS'.

My attitude has changed alot about having MS just from reading your posts and many others who deal with it each day as I do. I feel stronger even on my bad days just knowing I can come here and get help if I need it or offer help to someone else, makes me feel better. Sunny has also given me some great words of encouragement not long alog ( Sunnycitus, I think)?

I dont feel as discouraged as I first did when I was finally given the diagnosis due to the above. I even started back at the gym, but not teaching any aerobics, just yet anyway. I hope to get back into it by Spring (teaching). Meanwhile I am beginning to understand my limits and the days or time of day when I need to cool my jets, when to ride or when not to ride, when to paint or not paint, and so on. Some days are better than others, but they to shall pass.

Thank you for your friendship and support Gretchen, you are wonderful! Hugs~Katie turn wink yeah


What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 10/19/2008 1:29 PM (GMT -7)   
Good for you, Katie! :-)

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/19/2008 3:23 PM (GMT -7)   
siiiighhhhh.....poor misled katie....gretchen...respectable??? U clearly do not know her well enuf yet. Ok, ok....i'll go along and patronize her for u'r sake. (hehe)



(shhhh....gretchen is a WONDERFUL friend and person, but don't tell her i told u so!)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/19/2008 4:11 PM (GMT -7)   
Awwww Rhonda, yer not turning green on me are you? lol tongue  Just kidding...I know you love all of us in here. You have been a doll as well, AND ...I love all of you turn wink yeah
What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/19/2008 4:22 PM (GMT -7)   
Katie you have just been selected for the honor of being president of my fan club.  Rhonda will have to be the member.  I am not thinking there will be more than the two of you.  LOL.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/20/2008 10:35 AM (GMT -7)   
Ooo Katie!! Thanks so much! Not a bit of green here friend. :) I think u don't realize how much u too have added to this board. Being newly diagnosed doesn't preclude u from growing this community and helping others in ways u may never see. Thanks to u too friend!

Maybe we should hold a membership drive for Gretchen's fan club?? I will gladly make the signs....MUAHAHAHAHAHAHAHA ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/20/2008 12:49 PM (GMT -7)   
You guys are to funny smilewinkgrin
yeah   yeah yeah theres the 3 of of us dancing smhair shocked oh geese...we are not able to turn to the right, whats up with that..? LOL tongue
What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/27/2008 5:00 PM (GMT -7)   
So can a flare come and go within 24 hrs? For example, a pain that may hit for a few minutes but go and come back a few hours later for a few minutes?
 
I am not dx with MS, but wonder if I have it. I had a clear MRI and spine aside from stenosis of c4/5 and compression of my cord. However, Dr said that has nothing to do w my symptoms.
 
I woke up one day with pains jump all over my body. One night it was my ankle, which was fine in the am but then it was my opposite foot which was fine 15 minutes later. Since then I get jumping pains that hit fingers, toes, etc..and the pains last typically anywhere from a minute to hours. They feel like toothache pains.

I have had non stop muscle twitches for 2 months. If it were MS would it be so consistant?
 
 
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 10/31/2008 6:13 AM (GMT -7)   
Hello Katie:
 
We all have many symtoms with our disease.
 
BUT.....the fatitgue is the worse....after a full nighs sleep, you can wake up exausted. darn.
 
And  no one can understand the depths of our fatigue.....unless you are a fellow MS patient.
 
I take a script....Provigil...and I am still tired ALL THE BLANKIN' TIME.
 
As it is.  John
DX'ed June 21st, 1987
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/31/2008 6:22 AM (GMT -7)   

Hey John,

It is good to hear from you again.  I am sorry you are suffering from fatigue.  It is one of the most difficult to treat symptoms and one of the most difficult to live with.  Keep the faith and listen to some good music.  That is such an awesome escape. 

Thanks for posting.  We miss you. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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