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Date Joined Nov 2008
Total Posts : 8
   Posted 11/9/2008 11:44 AM (GMT -6)   
Daughter went hiking in Scotland three years ago. about 3 weeks later she started vomiting at night ( early AM) 3-4 nights a week. This went on for 3-4 months. Then stopped and she developed recurrent: nausea, dizziness, fatigue, numbness in limbs and blurred vision. (listed in terms of frequency). She has an eroded esophagus and takes Zantac. She has periods of normal health ( 20-30 days) and then 2-4 days of illness. We have seen a number of doctors: Neurologist, gastrointestinal specialists, infectious disease, psychiatrist, sleep Doctor, education specialist etc with no diagnosis. All CBC are normal, she does not have h pylori. We recently had a LYME test done and it was ELISA positive but the Western blot was negative with only on one band at 58. Any recommendations how to proceed? Does it make sense to follow up with a IGX test for LYME? Could this be MS?? If this is MS are the recurrent periods of illness so short? What diagnostic test could help differentiate? GP want to follow-up with a look at rheumatoid factors? She does not have a rash or any arthritic symptoms. ANY suggestions ??

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Date Joined Jan 2007
Total Posts : 3571
   Posted 11/9/2008 1:15 PM (GMT -6)   

I am so sorry to hear of your daughters problems!!  She sounds miserable.  I have to say, in my opinion, this sounds like lyme and not MS.  MS does not cycle every 30 days.  That is very typical of lyme though.  You have some indication via Elisa that she was exposed to lyme.  Lyme is very difficult to find via current testing.  Most lyme experts feel strongly that lyme can be diagnosed with a clinican diagnosis from a lyme literate doctor (LLMD). 

I would aggressively seek a LLMD and go from there.  Have you posted in the Lyme board here?  If not, please do that.  You will find a lot of very experienced and kind people there ready to support you.  I wish you the very best of luck. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

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