(((Debbie))) I’m so very sorry. Please do continue to post here; we care about you and are here to offer any support we can! I’ll search for vasculitis boards and let you know what I find. In the meantime, I am sending a big bowl of ice cream your way…
I’ll email you a few more links I found, but you might see if the local contact for the Vasculitis Foundation has some vasculitis message board leads. Hang in there, and please keep checking in and letting us know how you are doing. I am dishing out seconds on that ice cream right now…
I am so sorry. I know you did not want to do the cytoxan. Hang in there. I hope you stay here!!! We want you here and you are always welcome. I do hope you are on your way to some treatment that will get you feeling better. Good luck and always know you are wanted and loved here.