Thanks for your prayers last night. I have been diagnosed with microscopic polyangiitis and will need IV Cytoxan for 1-6 months. I could have taken it orally but the risk of bladder cancer is 1 in 3. I still have a risk with the IV, but less. Once we control this ugly monster, I will probably be on Cellcept for life. This doesn't confirm or rule out Lupus, MS or any other autoimmune disease. They are still shaving off pieces of the nerve they biopsied for testing. the rheumy is treating me aggressively in case my form of vasculitis is polyarthritis nodosa, or systemic necrotizing vasculitis - but because they can be fatal - I don't want them.
As there is no message board for vasculitis, I hope I can continue to come here for some support. If anyone knows of a vasculitis message board I would love to here about it. I have seen some messages on the immune board which I will continue to monitor.
Anyone who knows of me, knows Ice cream helps all that ails me, so I'm going to the freezer.