Ears are ringing!!!!

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healing spirit
Regular Member

Date Joined Mar 2008
Total Posts : 177
   Posted 12/9/2008 9:02 AM (GMT -6)   
For over a week now my ears have been ringing nonstop.  It is very annoying to say the least.  I stopped taking my flexeril because one of the side effects listed is ear ringing.  I stopped that a couple of days after my ears started ringing and it never made a difference.  My legs are killing me so today I am starting back on the flexeril.  I have my regular appointment with my neuro Thursday.  I have already called them and she is researching whether it could be the Rebif.  I had noticed after I inject that my ears would sometimes ring for a bit then quit.  Now it is all the time.  I called MS lifeline and they say it isn't supposed to be the Rebif so who knows.  I am really hoping it is a sinus thing and not the MS or Rebif.  Last week even though my ears were ringing I had 4 days of feeling good.  I was back walking my mile and going about my business like I never heard of MS.  I knew it was too good to be true.  Since Friday I have slowly felt crappy and today I started out just crying when I got up.  I do have this MS thing figured out though and I won't be beat.....so I have already dosed up, am on my second cup of coffee and getting ready to give myself a swift kick in the ass so I can move on. It's no different than when we thought it was fibromyalgia.  Now there are just more side effects because of the Rebif.   Sorry such a long post but I do feel better now that I have vented!

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 12/9/2008 9:12 AM (GMT -6)   

Hey Cindy,

You sure are being a trooper!!!  I am proud of your attitude to fight on.  The ringing in the ears could be any of the things you have mentioned.  I have never had that but I have heard that it can make you just crazy!!!  I am sensitive to noise so I can imagine the nightmare it would be to be unable to escape that.  I hope you have a great visit with your neuro.  Be aggresive about the leg pain.  We have a member on here that was convinced her leg pain was from the rebif itself.  Ask if that is a side effect. 

The good news is you had some good days there.  Let's hope you get to that place again.  Keep up the good work.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

healing spirit
Regular Member

Date Joined Mar 2008
Total Posts : 177
   Posted 12/9/2008 10:13 AM (GMT -6)   

Thanks Gretchen,

I am also convinced the leg pain I have and some of the weakness is due to the Rebif.  I had leg burn and some weakness a couple of times a year which now we realize was a flare but this is an ache that is totally different.  A lot of this has to due with the medication.  Hopefully it will get better with time.  Some of it has but a bad day still sucks!  Thanks for all the encouragement and support.  Maybe that member will post and let me know how rebif makes them feel.  Thanks again.




Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 12/9/2008 1:57 PM (GMT -6)   
Hey Cindy

The ringing could also be due to the changes in sensitivity just due to the ms. Unfortunately ms can affect sensitivy in both directions, but i've most commonly heard that it increases rather than decreases sensitivity. Please do let us know what the doc tells u on this.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
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Regular Member

Date Joined Aug 2008
Total Posts : 271
   Posted 12/10/2008 1:34 AM (GMT -6)   
Hi Cindy,
I had a noise like a moth flapping in my ear. Very annoying. For me it was an allergy to magnesium & I have had it since to some other things. Each time I desensed to the cause & it has not reappeared. Its horrid I know, & I used to get it a lot when I went to bed & there is no sleep when there is that noise going on. Hang in there & I am sure you will get to the bottom of it. Love & light.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream

Regular Member

Date Joined Oct 2008
Total Posts : 261
   Posted 2/26/2009 7:56 PM (GMT -6)   
Hi all. I too have been suffering from constant ear ringing for over 3 months now. I even stopped my allergy meds to make sure it wasn't them causing it. I stopped them for a week but it persisted anyway. Im on Flonase, Loratadine and a daily multivitamin. I used to get it every once in a while when I got dizzy and now its all the time. I am not dxd yet but am being tested by my neuro for lupus and autoimmune. I have posted on the lupus forum as well as epilepsy as I had seizures at 15. Feel free to view and comment :) I feel for you hun and sometimes I even get ringing on a different tone than the constant ringing I have. It comes and goes. Idk what to think about it. Well hope you get answers soon. Gotta go. -Brit

*Wifey & Mommy*

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