What I am about to post will not describe everyone here, but it will certainly describe my journey so far with MS.
One year ago today, I was dx with MS. I was a man of 53 years, and had had mulititude of problems the two years prior to the dx. When I found out, I cried for a moment when I got back to my car, and had a moment to myself. I do not rmember if I cried because I had MS, but I think not - I cried cause finally someone told me what was wrong with me.
With this dx there was a promise, at least inside my heart, that someone would be able to help me with or at least provide me with some relief from the brain fog - that was horrifying, the dizziness, the vision problems, and the list goes on and on.
Years ago when I knew nothing of MS, and ran into someone with MS, my only train of thought was that this person has tingly and numb limbs, and may become disabled as a result of this. I have learned over the last three years, that (and again I am speaking only of my self) that the numbness and the tingling is all secondary - that MS is a much more complex disease then just tingling and numbness. The heart of the desease is not that, it is all of the things that only u know what is going on - and that others cannot see. It is the brain fog, the dizzy spells, the anxiety, the depression, the fatigue, heat, lack of other bodily functions - cognitive skills, and all the things that cause most of the grief to this mysterious disease. I had no idea how complex this disease was until I had the opportunity of experiencing this all first hand.
A year ago, I did not know how I was going to do this, but I told myself that I had to, or I was going to allow this to control and ruin my life, as well as all the loved ones around me.
Well I have to tell you, one year later, I feel pretty darn good. The copazone in one manner or another has done something, but learning to manage the disease has been my greatest asset. Knowing when to have that good old naps - to ward of the fatigue, which seems to trigger so many of the symptoms that I use to get. Knowing how to recognise that being too warm will set everything in motion, and put me down on my ear. I have not had any brain fog for months, likely 9 months, which was the worst of my villians. When sysmptoms do appear, I know now that it is likely to do with being over tired, or too warm, or a combination of them both...
My message to myself that I wish to share with u all - is my attitude and learning to manage this desase has done wonderful things for me, along with the DMT (Copaxone) I am taking.
I just wanted to pass this on to the new people, and other too, that have been recently dx, that shiny days still do exist - and in some ways, I appreciate these days more now than I ever did before - THERE IS HOPE in your horizon and future.....
Have a great day, and thanks for allowing me to share this with you