Multiple Sclerosis question

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RF 949
New Member

Date Joined Dec 2008
Total Posts : 4
   Posted 12/12/2008 2:15 AM (GMT -6)   
Can multiple sclerosis cause an individual to basically speculate out loud in the form of grouping daily events into one cluster, and expressing belief in their being genuine?
I mean like totally unrelated things. Can it cause a person to make up a story in their head (using random facts), and sell it to another individual as being fact?
If yes, is it also normal for this to occur often?
I do not fully understand the severity of this disease. Is it normal for a person without MS to doubt one with MS as far as symptoms go? I do not mean doubt everything. I mean have serious doubts about some symptoms. Sorry if I am being rudimentary. I am not trying to be. I am being very serious, and hopefully very direct. I found this forum online, and I am trying to help myself to understand this illness more .
I do know about how it occurs (the body attacks it's own nerves in the spinal cord, and brain. I know about lesions, or plaques. I have read the long list of symptoms. And I have read the three distinct types of the illness.)
I guess I am more asking for myself. I am asking if I am normal for sometimes doubting an individual's symptoms. A specific individual. Not in general. Thank you in advance.

Post Edited (RF 949) : 12/12/2008 12:20:15 AM (GMT-7)

Counting My Blessings
Regular Member

Date Joined Apr 2006
Total Posts : 53
   Posted 12/12/2008 11:20 AM (GMT -6)   
Wow - sorry to hear of your troubles. I haven't experienced or known anyone to create events and believe them to be factual. Sounds like a mystery to me.

RF 949
New Member

Date Joined Dec 2008
Total Posts : 4
   Posted 12/12/2008 3:33 PM (GMT -6)   
Thank you. I just hate to think that about somebody. I know that the disease is trouble enough without having doubt thrown on to symptoms that can be vast, and far reaching. I am more aware of this disease because of my friend. If not for her I would still be on the dark about it. God speed.

RF 949
New Member

Date Joined Dec 2008
Total Posts : 4
   Posted 12/12/2008 8:34 PM (GMT -6)   
OK. My friend dialed a phone number on digit off from mine. She says now that the girl who answered is my friend, and that the girl will not stop calling her. She calls the girl my friend, and asks me to have her stop calling. Basically my friend dialed, a wrong number when calling me. One digit off. She may have trouble with this person calling her now, but is convinced that the caller is my friend. Symptom?

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 12/12/2008 8:55 PM (GMT -6)   
Hey RF

With ms or any other chronic illness, some forms of depression and anxiety do occur. Those would normally be in dealing with knowing u have an incurable disease that can and maybe will cause disability, but certainly loss of control of some body functions or sensations. Depression can set in from that realization as well as with some meds a person can be given. The situation u'r describing here sounds nothing like a person with ms. I'm not saying that person doesn't have ms, only that the behaviors u describe don't go along with the norm for ms. Given that, this disease is different with everyone, BUT....there are some knowns and i'd say this is far reaching beyond the norm. Could some other form of anxiety, depression, mental illness or even a basic need for attention be happening here?? Hang in there with u'r friend and try to be patient until u find out what's going on. U sound like a good and careing friend. I"m sure this person is glad u'r there.

Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
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RF 949
New Member

Date Joined Dec 2008
Total Posts : 4
   Posted 12/12/2008 9:38 PM (GMT -6)   
Thank you Rhonda. Thank you so much. It is nice to have somebody who understands. I feel bad for my friend. I do not know as much about the illness as I need to to help her as much as she may need. Her doctor tried to show me how to massage various place on her person to alleviate pain. He did it very quickly, and even went as far as telling me to wait until the next appointment in two months for instructions again rather than looking online. I had asked if I could look online for techniques which felt like an odd question even when I asked it, but I like to know that I am doing something properly whatever that thing is.
It is nice to have somebody, and my friend is somebody close to me. I think that you are right about the wanting attention; and also about that being nothing relating to the illness.
Thank you much again. I like how I was received on this forum. Happy holidays to you, and yours; all.

Regular Member

Date Joined Aug 2008
Total Posts : 271
   Posted 12/14/2008 10:56 PM (GMT -6)   
Hi RF,
It sounds like you are dealing with a complicated problem & then it is very hard to know what is causing what. My mum had MS which was not diagnosed for many years and drs and family treated her as if she was a hypochondriac so she said less and less. But the drs were giving her more & more cortisone to try to stop the pain. She became anorexic and quite psychotic & wierd saying that people were talking about her etc & when I took her to a psychiatrist he said that the psychosis was a fairly common reaction to too much cortisone. I had to sign to allow him to give her electro shock therapy cos he said she was too allergic to drugs to give her anti depressants & he would have had to force feed her which would have been worse. Anyway, after 6 treatments she started eating again, lost the psychosis and became herself again & was even able to move out of frail care into a flat and look after herself again! The difficult thing is that when she was psychotic she would not even talk to drs so I had to do it all, often guessing at what she was feeling it was a terrible time. I really feel for you.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream

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