Trigeminal Neuralgia and MS?

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Date Joined Aug 2006
Total Posts : 104
   Posted 12/12/2008 7:01 AM (GMT -6)   

Brief history. Been ill for 12 years, diognoised with 'possible' MS after a spinal lesion was found in 2004 and put on Copaxone injections. After a year doctors told me it wasn't MS and took me off drugs. Then I was diognoised with Lyme and put on IV antibiotics for a whole year, got better (this was finished in August 07) then been getting really ill again, all symptoms, numbness, fatigue, depression, bladder probs, etc.. but was getting really bad head pains like electric shocks in certain parts of face which are now daily and so painful I feel like dropping to my knees in pain.

Saw a nuro after my legs were so numb and I was in so much pain I couldn't get off the floor after collapsing and taken to the ER last month.

Saw him on Tuesday and he thinks I have Trigemianl Neurelgia and I am having 3 hrs of brain and upper spine MRI's this Tuesday with and without contrast in an open MRI (very freaked by small spaces!)

SO my question is this? common is this condition with people with MS.

Oh, and the nuro who is setting up these tests is an MS specialist, so after all these years and treatments for other stuff, I guess I could expect a possible MS diognosis...AGAIN!!!! although I think in my heart I have know this for a long time!!


debs : (

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 12/12/2008 9:25 AM (GMT -6)   
It could be MS.  It could lyme.  I could be many things.  Good luck.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

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