My first IV infusion of cytoxan is this Thursday. I started my prednisone and antibiotic yesterday. The antibiotic is to ward off a common type of pneumonia during the treatment and hopefully I can wean off the prednisone quickly. It is hard to find info on vasculitis, Sunny was very helpful. I also went on another message board and looked for messages on cytoxan under immune conditions.
I learned to pack what some refer to as a chemo bag - a small makeup bag with sugarfree mints, biotene mouthwash, purell, advil and tylenol, chapstick, a digital thermometer. It is suggested to have that bag handy when you go to treatment or out of the house in case anything is needed.
What I haven't found out yet, other than the suggestion of bland foods, is what foods help with the naseaus feeling. I have zonfran to take, but as a single mom, I am trying to have everything here.
I don't know if many on this board have gone for any chemo treatments, but maybe they have family that has. Everyone here has always been so helpful. I have bonded with some wonderful angels. thanks for all your support and encouragement.