New to this - Not sure what's wrong with me

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Regular Member

Date Joined Dec 2008
Total Posts : 51
   Posted 12/16/2008 11:44 AM (GMT -6)   
I have been struggling for about a year and a half on and off with symptoms that could have multiple causes but this seems like a good place to start.  Maybe you veterans could give me some advice.  I have had really bad joint pain along with fatigue, weakness, headaches (several migraines lately), I am cold all the time, can't remember names and sometimes hard to spit out the word I am trying to think of - simple words.  I have noticed balance issues over this time also. My vision suddenly got worse last year about this time - in a short period of time and I had to start wearing contacts and glasses again (had lasik 8 years ago).  I can tell that my vision is worse than it was a year ago but I haven't been back to get it checked again. My eyes are dry and wearing contacts for any length of time is bothersome.  I was to the doctor last year and was told that I was fine other than lacking vitamin D so he gave me supplements for that.  Hard to believe since I eat cheese (more than I should) and drink milk all the time. I gradually started feeling better but now it is back with a vengance.  My GP thinks it could be fibro but I don't have any of the tender points.  I have an appointment with a neurologist on Friday. What questions should I ask? Did I mention that I have had IBS since I was 14? Does this sound similar to anything that you have experienced? The only thing that ever tingles and is numb is my left hand - assumed it was a pinched nerve and went to the chiropractor - it eventually got better but not until after I quit going there. It seems to be coming back again and I have weakness along with it. Any advice?  I am nervous and frustrated all at the same time. smhair
I forgot to mention that I am now starting to get muscle twitches in my legs - sometimes it seems like my whole body kind of jumps.  Happening a couple of times a day - nothing painful but just a new oddity for me to relate.

Post Edited (austin73) : 12/16/2008 11:19:35 AM (GMT-7)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 12/17/2008 9:17 AM (GMT -6)   
Hi Austin,
I am sorry to hear you are not feeling well.  Please remember that we cannot diagnose you.  Your symptoms don't scream MS but again I am not a doctor.  The joint pain, eye problems  you describe, being cold aren't typical of MS.  The numbness and tingling are along with fatigue and word recall can be associated with MS.  Those are pretty vague symptoms and can be attributed to many, many illnesses.  Perhaps the most disturbing thing you have mentioned is the low vitamin D.  I would do everything you can to get that up.  Ask your doctor about taking a D3 supplement.  Ask to have your blood rechecked after you have been on it for a few weeks.
This link talks more about getting MS ruled in or ruled out.  Good luck and I hope you are feeling better soon.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Regular Member

Date Joined Dec 2008
Total Posts : 51
   Posted 12/17/2008 9:29 AM (GMT -6)   
Gretchen -
Thanks for your reply.  This is why I am confused - I have such a broad range of symptoms and they could point to mulitple causes.  I am just sick of feeling this way. I am hoping that the neuro is understanding and will listen - I am just expecting that he won't get it and blow me off.
Thanks again.

Heather H.
Veteran Member

Date Joined Mar 2005
Total Posts : 756
   Posted 12/22/2008 9:54 PM (GMT -6)   

Nobody's list of symptoms with MS is the same as everyone else. Like Gretchen, I am not a doctor. I have most of the symptoms that you have listed, but I also have more than just MS as well. I also have a hard time maintaining my core body temp. My neuro told me that this can happen but he couldn't be sure if it was from MS or from something else I have. At one point in time, my doctor told me that I have a mild case of Raynaud's Phenomenon. That is where your hands and feet get cold really fast and they hurt like crazy.

What's wrong with you could be just about anything and it may be more than one thing. You need to make a list and take it to your doctors and see if they can come up with. That would be your best option.

Best of luck.
Love many, trust few, always paddle your own canoe!
dx's:  Fibro, 8th cranial nerve inflamation, MS.
meds.:  none at this time

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