steroids and more steroids

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pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 12/16/2008 8:58 PM (GMT -7)   
sad  hello  all. it has been awhile since i have even posted here.like my topic says i am being steroided i just got out of the hospital after spending 5 days there. the DX was an "accute' MS flair up.the tests they put me through because i didnt go to the city for my own dr.i stayed local and they put me through the ringer.i had 5 days of solumedroul in the hospital am weaning off orally now.things are starting to come back to me after all the steroids.i will be getting therapy again so we can strengthen my right side. i am just hoping it will work.oh my after all that rambling my question is how long and how many steroids can they give somebody on a regular basis??i am already on them every 3 months for 3 days.i am at a loss from all this..anyway thank you for letting me vent..it could always be worse so i am glad they have the steroids..Merry Christmas everybody..barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 12/17/2008 7:10 AM (GMT -7)   

Oh Barb!!!

I am so sorry.  We have missed you around here.  Please come chat with us on a Monday real soon.  I am just sick about your recent flare.  I know that steroids help us to feel better faster after a flare, but I do not know how often you can have those steroids.  I know that there are many side effects to steroid use.  They are extremely hard on bones and can strip the calcium if you are not careful.  In solumedrol use, there is usually a dip in bone density after a treatment then you tend to rebound if you are good about calcium in your diet. Steroids also tend to be hard on your digestive tract with the acid reflux it causes. Talk to your doctor about the amount of soluledrol you can tolerate. 

Good luck and let us know how you are doing.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 12/17/2008 1:28 PM (GMT -7)   
Hey Barb,
I am so glad to hear from you. I have been worried about you, and obviously i have reason to be. Oh my, i am so sorry to hear of this flair up. It must have been bad for them to hospitalize you? I sure hope you are feeling better Barb. I really do not know about the steroids except the info Gretchen posted. I use to go every month for just 1 infusion which i thought was weird, so maybe it is up to the doctor and your specific case, you know? Wow five days, you must be flyin', LOL. I hope it helps get you stabalized quickly Barb. Please know i am thinking of you and that your in my prayers. Dont stay away so long. We all miss laughing with you on Monday's. It is the best medicine you know.
Get well Soon smilewinkgrin
Love
Lynn
 
Dx MS December, 2006
Started Tysabri March, 2008
Zanaflex as needed
Cymbalta


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 12/17/2008 10:11 PM (GMT -7)   

Shoot Barb, I’m so sorry you’ve been having such a hard time. I don’t have any info for you on the steroids, but just wanted to post and offer you my support. I hope to see you again in chat really soon…we missed you!

Sunny


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 12/18/2008 4:46 AM (GMT -7)   
thanks everybody.i hope to be back on chat monday key word hope lol.i am starting to feel better.i am taking meds. for bones and if it becomes a problem there are other things to explore.and i am very lively yet haha.that will end soon.again thank you..barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


casinokid80
Regular Member


Date Joined Mar 2007
Total Posts : 46
   Posted 12/20/2008 3:37 PM (GMT -7)   
mmmmmm steroids (gargles on self).  Hey all i havent been on here for awhile.  I almost didnt make it last september.  I had severe pneumonia, 105 degree temps.  Then while at the hospital my lung decided to spontanouely collaspe.  The had to put some tube down my throat and another in my chest.  SOOOOOO painful!!!!!  Doctors were asking me if i had a will.  Yea i got a will, a will to live, "now get out". 
 
Since then i had one last attack a week after i got out.  My feet and my legs up to my knees were totatly numb.  I did the solumedrol drip for 3 days, since then i've been feeling amazing.  All the numbess in my legs/feet are 100 percent gone.  My feet were actualy numb for 5 months before that, which i figured was permanent.  Only damage im left with is the VERY MINOR numbess on the bottom of my right hand (which seems to be slowly healing also). 
 
Im still keeping up my hapiness, and i found a beautiful lady who accepts my MS!  O yeah Pokey, thats about right every 3-4 months, 5 days may be excessive though (depends on the severity of the attack).  I get a 2 or 3 day drip every 3 months or so.  Im due next month, but i won't even ask unless im having an attack.  Its such a fine line with this stuff.  Too much is obviously really bad for your bones, liver etc.  Too little obviously isn't good either.  Id try for a 2 day drip next time.  I find it weird, that they say steroids only help speed up the healing of an attack.  Well how did it cure the numbess in my feet, that was there for 5 months?
 
Also how come you have to be hospitalized to get a solumedrol drip???  When i get it, i just have to go to the hospital for an hour till its done, then im free to go.
 
Happy holidays everyone!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 12/20/2008 5:23 PM (GMT -7)   

Hey kid!!!!

I have missed you!!  I was wondering what happened to you.  Wow you have been through the ringer.  I am so glad you are back to feeling good again.  I am so glad to hear about the love life improvment as well.  That is great.  It is all good with you!!!

I think pokey was hospitalized due to the severity of her MS flare symptoms.  Some get their solumedrol at home with a home health nurse.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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