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Jerrehow
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 1/2/2009 6:10 PM (GMT -7)   
Can anyone tell me something about the drug rebif my doctor is going to put me on it, i have just got done taking three infusion of methylpressolone and hoping to get some relief from my symptons of having pins and needles in my right hand.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/2/2009 6:12 PM (GMT -7)   
Hey Jerrehow

I can't give u any information, i don't have ms, but i wanted to let u know some here have used it and they will be along soon to give u their input. I hope the infusions help and u'll be feeling better soon. Let us know how u'r doing and best wishes with the Rebif.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 1/3/2009 1:37 AM (GMT -7)   
Hey Jerrehow, and welcome to the board!

I don't personally have experience with Rebif, but I know there are several members on here who do, and hopefully they can give you a firsthand account. Check out the following link for some info on this med, (provided by the company itself) which discusses its effectiveness, as well as common side effects. http://www.mslifelines.com/rebif/guide/index.jsp
Sunny

Post Edited (Sunnycitrus) : 1/3/2009 1:44:50 AM (GMT-7)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 1/3/2009 8:30 AM (GMT -7)   

Hey Jerrehow,

I am hoping the steroids help your symptoms some.  Sometimes it takes a few weeks after the infusion to feel a difference.  Sometimes those symptoms are there for good.  My feet are pretty much completely numb.  I have had that now for a year and a half.  I am thinking I am stuck with that symptom.  I know new symptoms are very very troublesome.  It took me a long time to get used to my new feet but for the most part, I don't think about it any more.  If you are stuck with pins and needles in your right hand, you will get used to it.

Please understand that the Rebif may slow down the progression of MS for you but it will not help with the pins and needles.  Non of the current treatments for MS progression treat symptoms.  You may want to talk to your doctor about a specific medication that will treat the symptoms in your hand.  What you have is nerve pain.  You can try lyrica or perhaps neurontin.

Good luck and let us know how you are doing.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


healing spirit
Regular Member


Date Joined Mar 2008
Total Posts : 177
   Posted 1/3/2009 4:09 PM (GMT -7)   

Hi Jerrehow,

I was on Rebif for 3 months.  They start you at 1/8 of a dose for 2 weeks, then 1/2 dose for 2 weeks, then full dose after that.  I am off the drug because I have elevated liver enzymes and because I wanted to see after 3 months what were symptoms of the Rebif and what was the MS.  Everyone is so completely different with these drugs.  Just remember that MS Lifeline is there to answer any questions.  They gave me more info than anyone.  Also the trick to any of these DMD is managing the side effects with advil or Tylenol.  Good luck and welcome to the forum.

 

Cindy

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