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New Member

Date Joined Dec 2008
Total Posts : 17
   Posted 1/4/2009 5:58 PM (GMT -6)   
smhair  Good Afternoon All, Feelin better then I was but Having Other Problems Today. I`ve Been on Oxagen for Almost a Year And Im really short of Breath Today Even with Oxagen. One Dr. said it was MS affecting me,My Nero said No,That was all almost a Year Ago. Today My Legs Ate Throbing,Swelling in One Leg. Anyone With MS on this Site been put on Oxegen or had trouble Breathing? Thobbing & Swelling in Legs? Im not sure If it`s Something To Be Worried about Or Not,And Im Really Tired of Being Treated Like Im Wasting there Time or "It`s All In My Head" Or "Im a Drug Seeker" at the ER> AAARRRGGG!!! Im so Frustrated,And A Bit Scared. Usually the Oxagen Helps but Im Feeling Worse. I don`t have the Energy to Put this on the Fibro Board to see if Anyone has Had Theses Symptoms There. H E L P ? What Do Ya THINK? PEACE & FRIENDSHIP. "psst-Kindness Is COOL- Pass It ON"! Have A Wonderful Pain Free Week Everyone. Any Dr.s on this site? THANKS. Please Answer SOONEST.... I`ll check Back Later.  Purple2 Please HELP?

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 1/4/2009 6:14 PM (GMT -6)   
Hey 2Tired

I've not heard of being put on oxygen as a direct result of ms. U'r legs could ache or pulsate...u'r muscles....due to the twitching from the nerve impules, but not usually swelling or throbbing. Have u discussed seeing maybe a rheumatologist?? I"m not sure that would be the correct path, but i don't see how this could be neurological. Just my opinion.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

New Member

Date Joined Dec 2008
Total Posts : 18
   Posted 1/4/2009 6:53 PM (GMT -6)   
I have never heard of anyone having to use oxygen because of MS- maybe you should see a doctor that specializes in pulmonary/lung symptoms or even see your regular physician and tell him about the breathing and the leg pains. Sometimes when you have MS - you have other symptoms that you kind of write off as another MS symptoms and they can be caused by other things. Don't let any doctor make you feel like you are wasting his time or seeking drugs. You shouldn't have to worry about that. I hope you find some answers and get to feeling better.

Regular Member

Date Joined Apr 2007
Total Posts : 334
   Posted 1/4/2009 7:02 PM (GMT -6)   
Hi 2Tired,

It sounds like you've been having a really hard time. Since this is a site for peer support only, no one can give you professional medical advice on here. I am not in the medical field at all, but if this increased shortness of breath and swelling is new and severe, I would urge you to get it checked out by a doc asap. I know you are sick of going to docs and the ER, but better safe than sorry with stuff like this, no? I hope you feel better really soon.


Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 1/5/2009 9:01 AM (GMT -6)   

Hi 2tired,

I will just repeat what everyone else has said here.  I have never heard of anyone being given oxygen for MS.  You have one doctor saying he put you on oxygen for MS the other saying it couldn't possibly be MS..........I would have those two communicate with each other.  My neuro and my GP email each other so they are on the same page.  Also, the leg pain could be MS but I have not heard of leg swelling as a result of MS.  Again, there are no doctors here that can or will diagnose you.  This is a forum of support.  Unfortunately you will have to go to the see your doctors for possible answers.  I am sorry you are having such a rough time right now.  Best wishes!!

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 1/5/2009 9:37 AM (GMT -6)   
Hello 2 Tired,

I wish I had some answers for you .. but I agree with the other folks, get to a medical professional ASAP. This sounds like something else, not MS or FMS. Please, please, please... go to the hospital and if your not happy with the health care you've been getting at the usual hospital that you go to then go to a different one. But GO!!

We'll keep you in our thoughts .. let us know how you're doing (I hopped over here from the Fibromyalgia Forum.. so that's where I can usually be found).. Good luck!!!
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Heart Disease, Bi-lateral Carpel Tunnel.  (Still being tested for other disorders/or whatevers).

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 1/5/2009 9:48 AM (GMT -6)   
hi 2 tired,

another fibro forum member here-i just wanted to second what patti said-these symptoms really don't sound much like fibro, either. i get shooting pain and a burning sensation in my legs, but never swelling. also, i don't know of anyone with fibro ever being put on oxygen specifically for fibro. i agree that you should definitely seek out another opinion on this!

i'll be thinking of you and hoping that you are able to get some answers and feel better soon.


Veteran Member

Date Joined Mar 2008
Total Posts : 519
   Posted 1/5/2009 2:02 PM (GMT -6)   

Hi 2Tired,

I am so sorry that you are having such a hard time. I agree with the rest...I think you need to see a doctor and find out what the oxygen is for? You said you've been on it for a year, so I imagine you have other medical problems too.

As for the leg throbbing and swelling. With Fibro you will get the pain, but usually no swelling. My feet and ankles hurt and swell alot, but I think that is from one of my medications.

I hope you are able to get things straightened out and start feeling better. I'm sorry for the way some of the hospital personal have made you feel. I've gotten that in the past and just try to ignore it. It really makes me so mad. If you get someone who is really cruel and not hospitable to you, then I would ask for someone else. That will show up on this person's next work evaluation!

Good luck and please keep us posted. I hang out on the Fibro thread. Please call your doctor or get a knew one if you think you need someone more familiar with your diagnosis. Look forward to hearing from you. Hang in there!

Hugs!!   Margie 

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause

Forum Moderator

Date Joined Jan 2005
Total Posts : 9250
   Posted 1/5/2009 3:56 PM (GMT -6)   
Hi 2tired,

Just another one agreeing with above...fibro is amplification of pain signals, not swelling nor any reason for oxygen. Please do get to a good primary care doc and see what's going on. Do you have insurance? or a regular doctor? If either of these are a problem there are a lot of agencies ready to help you.

Keep in touch,
Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 1/5/2009 9:42 PM (GMT -6)   

I have fibro and I have the swelling in my legs. My doctor told me that that sometimes happens with fibro. When I swim it decreases the swelling a lot but sometimes, at the end of the day, it comes back and causes problems when I walk.

My md gave me medication for water retention. At first I rarely took them but we were snowbound for a couple of weeks and my legs looked like footballs. lt was so bad that I asked for the meds again and am now taking them everyday. Parsley tea is great for reducing edema also.

Furthermore, some meds that we take will cause swelling also. Look up the side effects of you medication online and see it that is the issue.

Take care and feel better.

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 1/5/2009 9:47 PM (GMT -6)   
I found this on the net:

It appears that tightening in the myofascia occurs in many cases of FMS and CMP. If both of these conditions are present, this tightening causes more than double the trouble. Your muscles feel like they are swollen, as if they were encased in a skin several sizes too small. Edema is common in FMS and CMP interstitial edema that holds excess water in the ground substance, and does not respond well to diuretics.

Fibromyalgia Syndrome (FMS)
by Devin Starlanyl, MD

New Member

Date Joined Dec 2008
Total Posts : 17
   Posted 1/6/2009 4:26 PM (GMT -6)   
THANK YOU ALL SO VERY MUCH! Your all so Caring,Concerned,Generous & Compassionet. Everyone Of You Are Truely GOOD People. Im a Little better Today,I`ve Been Taking it Easy & Making out A New Get Healthy Plan. Watching Oprah`s - "Best Life Week. I Need To Love Myself,Take Care Of Myself-Mind,Body,Sprit-Inside & Out. I Took A 15 min. Walk Today with My Brace-My Brace is Pretty-Purple With Butterflys on it.I have to wear it cause I get DROP Foot.And Im Going to my Dr. Next week Unless the Breathing Trouble starts Againle Joy. I Truly Need To Start Liking then Loving Myself Like I used to When I Taught. Not Working is so Hard on Your Self Esteem. At Times I Feel so USELESS. I Want to Help M with the bills more then Just My disability pay And I want to Start Voleteering at a Hospital or Something. Anyway THANK YOU,THANK YOU,THANK YOU ALL!!! Listening to Opah Now. Anyone Else? Anyone Got any Suggesstions on How to Lose Weight With MS & Fibro. AARRGGG!!!!! " Rich are thoses who Tresure Simple Joys" PEACE & FRIENDSHIP. Purple2

Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 1/6/2009 7:15 PM (GMT -6)   

Hey 2tired,

I am from the Fibro forum also, and I did read your thread, and I must say, I myself have not had any Fibro-associated problems with breathing... and certainly not with swelling...

The only breathing problems I might have ever had were because of my OCD and anxiety.

I am so sorry you are having this trouble sad   I wish you the best of luck, I really do...


Fibromyalgia, Bipolar Disorder, Hallucinations, OCD, Chemical/Noise/Light Sensitivity, Irrational fears

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