From the Fibro forum... wanting to know EARLY signs of MS.

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JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/5/2009 7:41 PM (GMT -7)   
My name is Jenna, I am 21. I'm from the Fibromyalgia forum, which I was recently diagnosed with... But my doctor has recently told me that the problems I have been having RECENTLY that I was complaining of are NOT problems associated with my Fibro. (Like blurred/double vision and very poor balance) I DO have EVERY tender point of Fibro and so so many symptoms of it, which is how we know for sure that that is what I have... but now she is wondering if I have something else also that may just be starting... I am just worried because I am only 21 and now on top of everything, having trouble with even balancing...
 
Can anyone tell me very early signs that they themselves experienced while developing MS, please?
 
Thank you in advance!!
 
_____________________________________________________________
 
 
Fibromyalgia, Bipolar Disorder, Hallucinations, OCD, Chemical/Noise/Light Sensitivity, Irrational fears
 
 

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 1/5/2009 7:51 PM (GMT -7)   
Poor balance and blurred vision are symptoms of fibro. the balance problems can occur often, blurred vision when tired. Your doctor needs to do more research about fibromyalgia.

Oh, my balance is so bad that I have fallen down several flights of stairs, tripped up on hundreds of curbs, and fallen without provocation. It is a weird condition.

Donnaeil

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 1/5/2009 7:54 PM (GMT -7)   

Hey Jenna,

Hi and welcome to the MS board.  You have a lot going on from the look of your signature!!!  I am sorry!!!  Obviously we can't diagnose you.  Did your doctor mention testing for MS?  If you suspect MS what you would want to do is see a neurologist.  Also, if you suspect Optic Neuritis which can sometimes be an indicator for MS, you could see an opthalmologist.  An opthalmologist can look at your optic nerve and very often see inflammation that could indicate a problem that needs further investigation.  Certainly your symptoms of loss of balance and visual problems can be MS symptoms, but the problem is that those are symptoms for many many diseases and disorders. 

 
This site has a lot of very solid information on the diagnostic process of MS.  I wish you the very best of luck and I hope you are feeling better very soon.
 
My presenting symptom was vertigo.  It is different for everyone depending upon what part of the brain is being damaged by the disease. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


JCgurl
Regular Member


Date Joined Dec 2008
Total Posts : 176
   Posted 1/6/2009 8:18 PM (GMT -7)   
Okay, so, I am back... lol I wanted to thank everyone who replied to me...
 
I wanted to share: I have done A LOT of research and I have relieved myself because I have found that all of those symptoms and problems I was having that my rhuemotologist said were "not typical of fibromyalgia" but "sounded more like MS or Lupus", are ACTUALLY symptoms of Fibromyalgia afterall... RARE symptoms some of them, but they ARE symptoms of it!!, and she scared me half to death but sometimes I guess you have to go with your own judgement and mine is that I am fine.. I don't believe I have anything else but Fibro (thank god!!!!!!!!)
 
Like Donnaeil has said, poor balance and vision problems can certainly be from Fibro, I found that also in my research... and who better to listen to than someone who has experienced it herself!!!!! And also what I was scared of was that I get mouth sores very often and a problem swallowing my food!!!!!!! It is RARE for either of these to occur with Fibro, but they have in people, (stranger things do happen) and I guess I am just getting hit really hard with a lot for some reason...
 
If anyone has any other thoughts on this, feel free to reply, I will check back in soon
 
Just know that I feel much better and yes, Donnaeil, I probably should tell my doctor to "do more research" lol
 
Thank you everyone again!
 
_______________________________________________________________
 
 
Fibromyalgia, Bipolar Disorder, Hallucinations, OCD, Chemical/Noise/Light Sensitivity, Irrational fears

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 1/6/2009 8:43 PM (GMT -7)   
Well said and well written.  Good luck with everything and keep us posted. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 1/7/2009 11:57 AM (GMT -7)   
Jenna,
My symptoms started with a twinge behing my right ear that woke me up one night when I was sleeping. After that my right shoulder got numb and the numbness worked it's way down my right arm until it got to my hand. Bad thing is, my right hand got numb and is still numb to this day. That was back in the fall of 2004. The doctors I went to see all thought I was nuts and really didn't want to investigate any of the causes. It wasn't until late June of 2006 when I fnally got a doctor who became concerned and sent me to see a Neurologist who ordered me to take an MRI. The MRI came back with a bunch of lesions on my brain so the doctor diagnosed me then with MS. At first I was releived because I finally found out what was wrong with me after 2 years of knowing there was something wrong. I have now been diagnosed as having Primary Progressive MS, which as just about everyone with MS knows can't be controlled to easily. I have tried alost everything and the only thing that seems to have done any good for me was the drug Cytoxin, which really isn't prescribed for MS. Anyway, to make a long story short, I haven't had any kind of treatment for 4 months now and am waiting to hear from my Neurologist as to when he is going to start me back on Cytoxin Treatments. Good luck to you young lady, and may you have a long and prosperous life ahead of you! Stay positive!


 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.


SJF1974
New Member


Date Joined Feb 2009
Total Posts : 1
   Posted 2/1/2009 12:18 PM (GMT -7)   
I was misdiagnosed with fibromyalgia.......turned out to be MS.  Go get an MRI.  I wonder how many others are misdiagnosed with fibro.

brownie197013
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 2/2/2009 4:38 AM (GMT -7)   
Hi, I have Fibromyalgia for sure with more and more obvious trigger points. If you are having vision problems go to an opthamologist. If you are having balance problems you should pursue MRI. But I would be most concerned with the trouble swallowing this is very important to get checked out. All of these diseases seem to have similarities and most symptoms can be related to all of them, but please be safer that sorry! I listened to it's just your Fibro for so long now that I currently can't work presenting with symptoms that worsen everyday.
Brownie197013

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