When to try for disability

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healing spirit
Regular Member

Date Joined Mar 2008
Total Posts : 177
   Posted 1/6/2009 11:31 AM (GMT -6)   
I have been feeling very discouraged lately.  I have been off rebif for 19 days due to elevated liver enzymes and at first felt much better.  As time goes by, some things are much improved like the shakiness and vibration feeling and less burn (neuropathic pain) in my feet.  Some of this is 60% better.  However some days feel like I never went off rebif.  I feel like every day is a struggle, then I will have a couple of days where I feel better and just as my spirits lift...BAM....this darned disease tells me..."sorry but I am still here".  I have tried everything from working with less patients at the chiropractors office to rearranging my private practice schedule when I feel worse.  I have tried doing everything when I feel good or bad or doing nothing.  The only time I feel I make some head way is when I don't have any stress to work or be anywhere and can take all the time I need to do whatever I need to do.  Then if I feel bad I just stop.  I also know that I will probably be starting back up on some form of DMD soon.  Now that I have gone on and on my question is how did some of you feel and what finally made you decide to apply for disability?  Anyone that has any input, I would really appreciate it.  Thanks so much for the support.  I hope everyone had a good new years.

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 1/6/2009 7:45 PM (GMT -6)   
It is hard to qualify for ssdi unless you are totally unable to work.  That is when most apply and get approved.  Be ready to keep detailed records...make copies of everything.  If you are denied....appeal immediately.  Some have more success upon appeal if they hire a lawyer.  This is a hard decision...good luck!!!

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

healing spirit
Regular Member

Date Joined Mar 2008
Total Posts : 177
   Posted 1/7/2009 6:30 AM (GMT -6)   

Hi Gretchen,

I have been thinking about the future should I not be able to work at all.  Right now I can still manage my practice.  The chiropractor is what I am worried about continuing.  I have other options like teaching or something like that.  I am hoping to never have to even try for the disability.  It is just in the back of my mind.  Some days are such a struggle but then I can still walk and work so I feel guilty when it is a struggle when I can do more than others.  Thanks for the reply.  I hope you had a good New Years. 


Regular Member

Date Joined Dec 2008
Total Posts : 196
   Posted 1/7/2009 1:44 PM (GMT -6)   
I, too, wonder about applying for disability. I am 60 years old am still holding my own working but sometimes it does get really hard to come to work but somehow I manage anyway. My Neuro told me that if I get to the point where I can't work then he will help me fill out the paperwork to apply for disability. Just maybe yours will be so kind to help you also. Good luck to you and keep us posted.
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.

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