Hi Gretchen, sorry I didnt get back very soon. It has been so busy around here.
The good news I am feeling SUPER! I started eating Glutan Free and Casein Free and the change started overnight! I did test positive for being Celiac, which all started years ago when I had a skin biopsy for a very bad rash I had and still get now and then called dermititis herpatiformis ( DH). That rash alone is considered positive for Celiac. Unfortunatly, I was never told that.
In Celiac damage occurs to the lining of the small intestine from injesting Glutan. People who continue to eat Glutan who have Celiac risk serious complications down the road with their small intestine....even cancer can develop. I also found out that people w/ Celiac can have lesions on their Brain MRI that look similar to those of people w/ MS. This is something I need to investigate more but intend to ask my neuro Dr. about
at my next appt. in June. I am also due to have another MRI then, ugh!
Casein is a milk protein that I am allergic to found in all dairy/milk products. I always thought I was just 'Lactose Intolerant but their is a difference.
With an allergy-our body has an adverse reaction as a result of the bodys immune system.
With an Intolerance- Our body cannot deal w/ the food properly, but it has NOTHING to do w/ immune system.
In Celiac the bodys immune systems response to ingestion of glutan causes damage to the Intestine.
Glutan, by the way, is a protein found in wheat,barley,rye,oats and any other foods derived from these grains. The only treatment for people with Celiac or people with Glutan Intolerance is a LIFETIME long elimination of glutan from the diet. You can't even share the same toaster to toast your brown rice bread in with someone whos eating wheat toast. No contact at all. The slightest bit will set off the symptoms and can begin damage to the small intestine.
Heres the list of symptoms for Celiac: ( you don't have to have them all to have Celiac Disease)diarrhea,gas,bloating,vomiting,constipation or constipation alternating w/diarrhea,nausea,skin rash,malabsorption, weightloss or gain,anemia,chronic fatigue,weakness,muscle cramps,neurological complaints such as seizures,headaches,concentration and memory problems....and more. Can you see the similarities of this disease and MS? There are specific antibody blood tests to and biopsy of small intestine or being dx. w/ DH to get diagnosed. HOWEVER....IF YOU ARE EATING A GLUTAN FREE DIET WHEN GOING THROUGH THE TESTING, THE BLOOD WORK WILL COME BACK NORMAL. Sorry, did not mean to use large caps there.
The hardest thing for me has been figuring out what I can eat, but I have found wonderful recipes, a support group, and a world of info. AND......My weight is literally 'dripping off', of me...mostly where I carried it the worse ( around the middle). I even feel like i am thinking clearer. Anyway, I have to run, but if ANYONE ELSE suffers from what they thought was IBS, they should get this checked out. I also found out theres a high percentage of folks w/ MS and Celiac. Hugs~Katie
What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
Diagnosed ~ August 2008